Your donation will make a difference:
Cystic Fibrosis Trust

Respect final wishes

Trust embraces drive to honour legal wishes of organ donors.

The Cystic Fibrosis Trust has strongly welcomed today’s move by NHS Blood and Transplant (NHSBT) to no longer seek consent from the family of registered organ donors in the hope of increasing organ donations by 9%.

More than 500 families overruled their loved ones’ decision in the in the last five years, refusing to allow their organs to be used for transplants despite the deceased people being legally registered as donors.

People with cystic fibrosis often find themselves requiring a lung transplant, and one in three people with the condition on the waiting list will die before they receive a life-saving transplant.

Ed Owen, Chief Executive at the Trust, said: “Organ donation is the greatest gift of all and it is vital that the wishes of someone signed up to the organ donation register are honoured.

“The UK has one of the highest family refusal rates in the western world and this has to change.

“We look forward to working with NHSBT and the government in the coming months to ensure the UK has a system for organ donation that is truly the best it can be.”

The Trust’s Hope for More campaign led to the Government agreeing to trial a system of national allocation for donated lungs, which is based on the recipient’s need rather than their location.

Additionally, the Trust has invested in cutting-edge research to ensure that the organs that are available are fit to be used – around 75% of donated organs are unusable with current techniques.