There's snow getting in her way

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Whether you embrace the winter wonderland or see the world teetering on a frozen precipice like something out of ‘The Day After Tomorrow’, one thing is apparent – Britain as a nation doesn’t always do snow well. But if you’re one of the thousands of working parents with children with CF, and your child has a clinic visit, sometimes you need to show the elements who’s boss. In this extract from her blog in December 2017, Emma Hughes recounts a challenging visit to a new hospital with son Chester.

Chester in the snow

After weeks of waiting for a bed at Stoke Hospital for Chester to trial the new Nippy Clearway machine that should help him clear his airways, we have finally got a bed. It’s been a frustrating wait, but I fully appreciate the need for beds for poorly babies.

To be honest this has to have been the most stressful admission we have ever had and being in a different hospital than normal I find myself feeling a little “homesick” for our usual hospital, if that is even possible. We were lucky enough to have been booked in by a nurse we met before on another admission here, but I still feel a little lost not being on our normal ward with familiar faces.

We were initially told this morning that there was no bed available, however, I won’t lie, that was a godsend because at the time I had literally just abandoned my car at my mother-in-law’s after spending 40 minutes rocking back and forward in an attempt to get my car moving in the foot and a half of snow. That adamant was I that I wanted to make it to work, I found myself stuck literally seething that I faced abandoning my car on the middle of a roundabout.

After making my way home, with my children, with no car, I set about making a plan for the next day which included getting my car, getting the kids to nursery and school and then getting to work.

The next day…

Knowing we weren’t just going to be five minutes down the road like normal I literally packed for every eventuality which meant loading my car with way too many bags. I then realised that because of the snow I hadn’t been to get his antibiotics and I didn’t have enough to last. This meant once I had got my car dug out (with the help of friends), and dropped Oakley off with his Nanny, I then had to take a trip to the pharmacy, which is on a hill, with a car park at the bottom, so like an a*^#hole driver I abandoned my car right outside the pharmacy. There was no way I was chancing the car park even with the shovel in my boot!

The drive to hospital was uneventful, with cars abandoned all along the route. Knowing what hospital food is like I made the decision to take Chester for a cheeky McDonalds on the way in, a decision that proved to be a great CF parenting win after they decided to weigh him on admission! All those fish fingers, nuggets and chips added a few grams, win-win for me!

Read the full story at Emma's blog.

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