“Writing a book in lockdown gave me something positive to focus on”: Alex, 13

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13-year-old Alex Shears has written a new book to raise money for the Trust. He tells us why he won’t let CF stop him following his writing dreams. 

Alex Shears with his bookDuring lockdown, Alex Shears, 13, from Suffolk, put pen to paper to write his first book. Alex was shielding at the time due to his CF and wanted to turn a negative situation into something positive.

“CF hasn’t impacted me too much in life so far, but it affected me most when COVID-19 hit. I was on the shielding list and had to stay at home with my parents. I was off school for seven months the first time and three months the second time. As an only child this was very boring, but the book gave me something positive to focus on,” says Alex.

“I love how there are no boundaries to what you can do with it. It really lets my imagination loose and flow out in ways it wouldn’t normally.”


Called The Endzone, Alex describes the book as a “sci-fi comedy where three people encounter a journey into another dimension and must escape. Expect twists, turns and random obstacles for the characters to overcome!”

Alex, who also loves acting and writes his own scripts, says he most enjoys the freedom of writing: “I love how there are no boundaries to what you can do with it. It really lets my imagination loose and flow out in ways it wouldn’t normally.”

The Endzone front coverThe book is illustrated by Pete Williamson, who has illustrated over 65 children’s books during his career and donated his time to help bring Alex’s characters to life.

The Endzone is available via download to anyone who wishes to make a donation to Cystic Fibrosis Trust. “I wanted to raise money for the Trust because I think they do great work supporting families with CF and I wanted to help with that,” says Alex. “I also know they are doing research projects, which I hope will help cure CF in the future.”

On his own future, Alex plans to continue writing and inspire other young people with CF to follow their dreams. “I am planning to write at least three more books for charity and look to inspire others by doing this. I also hope to achieve my goals in acting in the future either on TV or in films.”

Find out more about The Endzone and download a copy, and donate to the Trust via Alex’s JustGiving page.


Cystic fibrosis (CF) is a genetic condition which causes sticky mucus to build up in the lungs and digestive system. It affects more than 10,800 people in the UK. One in 25 of us carries the faulty gene that causes it, usually without knowing.

Your donations help us fund ground-breaking research, make sure that everyone has access to life-saving medicines and high-quality clinical care, and reach those with CF and their families that are most in need. Donate today to help everyone with CF live a life unlimited.

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