Our volunteers help us improve lives affected by cystic fibrosis while gaining valuable experience through flexible roles. We'd like to say a huge thank you to everyone who volunteers with us!
Megan is mum to Ruadhán, who is 7 months old and has cystic fibrosis (CF). She recently ran the Belfast Relay Marathon to raise money for Cystic Fibrosis Trust, crossing the finish line with Ruadhán in her arms. “He motivates and inspires me every day to be the best mum for him,” Megan told us.
We support life sciences partnerships by providing high-quality real-world evidence, expert analysis, and ethical oversight to drive research and innovation in CF care. Collaborate with the UK CF Registry to accelerate advancements in cystic fibrosis treatment and outcomes.
Today we’re announcing £1.3 million of new research funding focusing on your research priorities, including innovative ways to treat NTM lung infections and early studies on better ways to treat CF diabetes.
Talking to friends and family about your child’s CF can be challenging. It can be hard to explain the condition and how it’s impacting your family while fielding questions from well-meaning loved ones. But talking openly about CF can be really helpful. Sharing insights into the condition can help those around you understand why the treatments and medicines are so important, why your baby needs extra care, and how they can support you as you adjust to the diagnosis.
