Our amazing supporter Richard, 38, ran the TCS London Marathon for the Trust last year, and will be pounding the London pavements again at the 2023 event in April. Here he shares a typical Sunday of training, jobs, and spending time with family.
Ahead of the London Marathon this Sunday, we sat down with Colleen, mum to five-year-old Ewan, who has cystic fibrosis (CF), to hear all about him, her fundraising and how she’s feeling about the Marathon.
With your support this Wear Yellow Day (16 June), we can continue to fund research into life-changing treatments that work for everyone with cystic fibrosis (CF). Together, we can ensure children with CF like 18-month-old Luca can look forward to a brighter future. Luca’s dad Jason shares their story.
19-year-old Lily Goddard has cystic fibrosis (CF) and will be running her first marathon at this year’s TCS London Marathon in aid of Cystic Fibrosis Trust.
Here, she tells us how Kaftrio is helping her reach the finish line, what it’s like managing CF alongside training and what keeps her motivated to run.
We recently launched our first ever Cystic Fibrosis Exercise Practitioner Fellowship. The 12-month fellowship has been awarded to Lucia Diego-Vicente, who is based in the CF team at the Royal Victoria Infirmary in Newcastle-upon-Tyne. Here, Lucia shares some simple exercises for the CF community to try at home.
Do you love playing video games with your friends? Reckon you could give Ed Sheeran a run for his money in the singing stakes? Maybe you’re passionate about speaking up on important issues relating to your CF? Our CF Youth Programme is for you! We have loads of social events, workshops and opportunities for young people affected by CF to get involved with. Here’s Jakub and Tilly to tell you more!
We have been working with CF teams across the UK to explore staffing levels in CF multidisciplinary teams. Our Clinical Quality Improvement Manager, Dr Jana Witt, explains why this is important and what we’ve found so far.
