On Sunday 7 September, tens of thousands of people will be limbering up for the Great North Run, one of the world’s most iconic half marathons. With the countdown well and truly on, we caught up with some of our amazing #TeamCF runners to find out about their motivations for taking part.
Our supporter Bryony is mum to Oliver, 3, who has cystic fibrosis (CF). Oliver has a rare type of gene mutation which means he can’t benefit from modulators like Kaftrio. Bryony shares why research is so important for children like Oliver – and how she’s determined that CF won’t define him.
This summer, we’re asking you to help fund vital research that will unlock the many unknowns around the health of people with CF as they grow older – a top research priority for the CF community. Here we talk to Tom about living with CF in your 40s, managing the treatment burden, and his determination to not let CF hold him back.
Claire is a former CF nurse who now works as Patient and Public Involvement and Engagement Partnership Manager (PPIE) here at Cystic Fibrosis Trust. We caught up with Claire to hear more about how she works with the CF community and the changes she’s seen in CF care.
As people with CF live longer, we have partnered with The British Society for Research on Ageing (BSRA) to help us achieve our research goal to enable people with CF to live longer, healthier lives.
With more people living longer with CF, we’re asking you to help fund vital research that will answer the many questions about the health of people with CF as they grow older. Here we talk to Tonia about living with CF in your 50s, her advice for the younger generation, and the importance of research to understand the unknown.
We’re Rosie, Tilly, Tehya and Chawan and we’re all part of Cystic Fibrosis Trust’s Youth Advisory Group, or YAG for short. We’re a group of young people aged 14–25 who are living with CF, or who have a close family member living with the condition. We’re here to make sure that the voices of young people with CF are heard loud and clear. We meet online twice a month, to chat, laugh and work hard to make a difference... and get to know amazing people along the way. Here we answer some pressing questions so you can get to know us a bit more!
