James Dunmore, former star of Made in Chelsea, sadly lost his two sisters, Lucinda and Jodi, to cystic fibrosis when he was a young boy. Since then, James has raised thousands of pounds for Cystic Fibrosis Trust by climbing Mount Kilimanjaro, and has supported our campaigns for access to life-changing CF drugs on the NHS. We caught up with James to hear more about his memories of his sisters, coping with the grief, and his determination to raise vital awareness and funds in their memory.
On Thursday 9 March, members of the Sixty Five Roses Club met online to hear from key scientific voices on current research in the CF landscape, and a London Marathon runner about his experience running the marathon with CF.
Every month we’ll be going inside the lab to chat to some of the amazing researchers working in cystic fibrosis. Today let us introduce Nicole. Nicole’s research is funded through our SRC research programme on CF diabetes (CFD), which is one of the most common complications of CF.
A study published by the Prescription Charges Coalition has found that one in ten people with long term health conditions are skipping their prescription medications due to the cost.
As part of our first Exercise Practitioner Fellowship, we are today launching a survey to help CF centres improve exercise provision for people with cystic fibrosis. Lucia Diego, Exercise Practitioner Fellow at the Adult CF Centre in Newcastle-upon-Tyne, explains more.
Our amazing supporter Siobhan was inspired to hold a FeBrewary event last month to bring friends and family together, raise vital funds for our charity, and educate people on what living with CF is really like. This is her story.
Our UK CF Registry is a vitally important anonymized database for everyone with an interest in CF. We caught up with Dr Jamie Duckers from the All Wales CF Centre based in Cardiff to find out how he uses data from our UK CF Registry in his research.
Thanks to the generous support of the Joseph Levy Foundation, you can boost your budget to support you while studying for an academic or vocational course
