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About clinical trials

Clinical trials are helping us understand more about CF and improving treatment and care for people with CF.

Cystic Fibrosis Trust responds to Statutory Sick Pay report

The Work and Pensions Select Committee - which assesses the policies and spending of the Department for Work and Pensions, including benefits - have published a report recommending key changes to Statutory Sick Pay (SSP).

“Harvey is 60, just like Cystic Fibrosis Trust, and it’s been quite the milestone”: Harvey and Hazel’s 60th anniversary story

So much has changed since the Trust was created in 1964. We spoke to Hazel, who, along with her brother Harvey, has been part of that journey from the beginning.

Get support from Work Forwards

If you would like support on any aspect of work or employment, please fill in our online form and we’ll get in touch to help you, or you can contact us on the details below.

“We hope our children will all have a life unlimited, both in terms of their ambitions and their life expectancy”: Thomas and Saskia share their story

We sat down with Thomas and Saskia to talk about their three children, Oscar, Ysé, and Philippa, who all have cystic fibrosis.  

Newborn blood spot screening

Nowadays, CF is usually diagnosed through newborn blood spot screening, which is also known as the heel prick test.

Late diagnosis

Nowadays, most people with CF are diagnosed following newborn screening. However, sometimes the condition may not be diagnosed until later in life.

Antenatal testing for CF

There is no routine UK-wide antenatal screening for cystic fibrosis. However, for those who know they are at risk, your doctor may offer antenatal testing.

CF carriers

People who have one CF gene variant (also known as mutation) are called CF carriers. Find out more about what that means here.