Some people with CF can develop hearing loss after receiving aminoglycosides antibiotics such as tobramycin, amikacin or gentamycin. But screening for hearing loss in CF can be expensive and difficult to arrange. Over the last eight years CF clinician Dr Anand Shah and audio engineer Dr Lorenzo Picinali have been investigating innovative new methods to change this. Their latest cutting edge research study, co-funded by the Trust and RNID, is testing whether hearing can be monitored at home using virtual reality and gaming. We spoke to them to find out more.
Everyone with cystic fibrosis has a different story to tell. This is Joanna’s story.
Joanna is a mum of four children, two of whom have CF, and Trustee of Cystic Fibrosis Trust. Here she reflects on life with two children with CF, how Cystic Fibrosis Trust helped during those early days, and what her perfect gift would be this Christmas.
Aminoglycosides are a group of antibiotic medicines such as tobramycin, amikacin and gentamycin. They are very effective at treating CF lung infections such as Pseudomonas aeruginosa and NTM. However, a side effect of long term use of aminoglycosides is that they can cause permanent hearing loss. In June we announced co-funding with RNID of a research grant to redesign aminoglycosides to prevent hearing loss. The research is being led by Dr Cheng and colleagues at the prestigious Stanford University in America. Here we explain their research in more detail.
Everyone with cystic fibrosis has a different story to tell. This is Andy’s story.
Andy Beggs is 56 and was diagnosed with cystic fibrosis (CF) at three years old. He lives on the Wirral with his wife and their spaniel Molly. Here he reflects on how the CF landscape has changed in his lifetime, growing older with CF, and what a life unlimited means to him.
Funding and supporting research that will benefit everybody with cystic fibrosis (CF) is at the heart of everything we do at the Trust. We won’t stop until everyone can live without the limits imposed by cystic fibrosis. To celebrate the launch of our 2022 Research Impact Report, we share some of our research successes over the past year – all made possible because of your incredible support.
To mark Menopause Awareness Month in October, we spoke to Jane, 59, about her experiences of going through the menopause, her top tips and the need for more awareness and information about CF and menopause. Jane also reflects on the need for geriatric and menopause specialists within CF teams, with people with the condition living longer than ever.
