Following the death of her son Josh at just 28 years old, Amy has been determined to keep his legacy alive by raising vital funds and awareness for Cystic Fibrosis Trust. She shares her favourite memories of Josh, how she’s navigated the grief, and what she wishes more people understood about cystic fibrosis.
Content warning: This story touches on topics of loss and grief.
Cystic Fibrosis Trust has joined a coalition of charities calling on the Government to improve how Personal Independence Payment (PIP) works for people living with progressive conditions, as part of the ongoing Timms Review of PIP.
The Helen Barrett Bright Ideas Award is a grant available for anyone with cystic fibrosis over the age of 18 to help support the launch of a business idea or to help grow an existing business.
Cystic Fibrosis Trust offers grants up to £350 for items or services that improve the health and wellbeing of people living with cystic fibrosis. Apply now.
ReCode Therapeutics Inc. has developed a potential new genetic therapy (RCT2100) for cystic fibrosis. RCT2100 is an inhaled treatment that mimics a natural substance in the body that makes the CFTR protein and may lead to the production of functional CFTR protein and help prevent further damage to the lungs. Part 1 of the study tested RCT2100 in people without CF to determine doses to test in the remainder of the study. We are now recruiting people with CF for Part 2. In Part 2 of the study we will test the safety of different dose levels of RCT2100 in...
