One of the top research priorities in the CF community is: How can we relieve gastrointestinal (GI) symptoms such as stomach pain, bloating and nausea in people with CF? To help answer this question, we need to understand the different patterns of symptoms that may occur in people with CF and what goes wrong in the body to cause these symptoms (we call this the ‘mechanism’). If we understand this correctly, we can choose treatments that are likely to help relieve symptoms and test these in clinical trials. There will be two parts to the study: Part 1 and Part...
If you attend Nottingham or Leeds CF centres you may want to provide blood and poo samples or agree to an MRI scan in addition to remote participation.
Mark Blois tells us about his 25-year career as a nationally acclaimed lawyer specialising in education law, recently being included in the 2021 Disability Power 100 and The Lawyer Hot 100 2022 – and why he’s stepped out of his comfort zone to try and become a role model.
Putting up the Christmas tree, decorating the house, wrapping presents, only for one of my children to casually mention the “must have” item so late that only Amazon Prime can come to the rescue… Christmas with a child with cystic fibrosis (CF) is much like Christmas for anyone else. But there are a few additional things our family has to consider, so here is my (Lian) festive take on five things you’ll only get if you’re a parent of a child with CF.
Festive lights brighten our streets and the chill in the air reminds us that winter is upon us. It’s a season that can bring extra worries for many households, especially around heating, energy bills, and staying well. If you’re feeling the pinch, you’re not alone.
Charlotte is mum to Harry, 15, who has cystic fibrosis (CF). She talks about the challenges people with CF can face during the festive period, her hopes for future CF research, and her wish that one day her son, and everyone with CF, can “breathe easy”.
Early results from CF STORM, a clinical trial looking at new ways to reduce treatment burden for people with CF, have now been released. Ahead of the full results from the trial in Summer 2026, Dr Gwyneth Davies based at UCL Great Ormond Street Institute of Child Health and co-Chief Investigator of the study, explains what we know so far.
After two Christmases spent in hospital with cystic fibrosis, Emma's wish for 2025 is simple – a day at home with her husband, cuddles with the cats, and enough roast potatoes to go round
