Nearly half (47%) of children, and 11% of adults with cystic fibrosis have reported being unable to access a social worker. Cystic Fibrosis Trust calls on the Government to ensure everyone with CF has access to a CF social worker in light of the ‘concerning’ NHS staff shortages.
We all have mental health, good or bad, in the same way that we have physical health, and that means people with CF can experience mental health problems in the same way that people without the condition can.
As we publish the findings from our patient-reported experience surveys, Jana Witt, Clinical Quality Improvement Manager at the Trust, explores the key insights
This year’s CF Week is all about how, as a community, we won’t stop: whether that’s researching for ground-breaking discoveries, supporting the physical and mental challenges of cystic fibrosis (CF), or ensuring everyone with CF has access to the best possible treatments. Here, Nubi shares her journey of starting on Kaftrio, exploring her personal experiences and views of the new triple combination therapy that was licensed last year.
