Since Kaftrio was licenced in 2020, many people with cystic fibrosis have shared their experiences of the treatment including the different ways it has affected their mental and physical wellbeing. We recently updated our factsheet on Kaftrio, reflecting these varied and often complex experiences.
Here, our Director of Medical Affairs Dr Keith Brownlee addresses the subject of mental health and Kaftrio, sharing the latest advice from the CFMA and highlighting the support available from your CF teams and Cystic Fibrosis Trust.
Our latest CF Registry report revealed a rising number of people with CF becoming parents, with over 100 people with CF having a baby in 2021 – nearly double the number from 2020. In this article, we speak to Dr Imogen Felton, consultant in adult CF and respiratory medicine at the Royal Brompton, about a first-of-its-kind antenatal clinic set up at the hospital to support women with CF on their pregnancy journey.
Our highlights from the fifth Cystic Fibrosis Clinical Trials Conference, on the themes of genetic therapies, diversity in clinical trials and working together as a CF community.
We caught up with Gary McNally, Employability Manager at Cystic Fibrosis Trust, to hear more about his role, some of the challenges facing people with CF when it comes to work and employment, and our exciting new programme of employment support, Work Forwards.
Anna is Corporate Partnerships Manager here at the Trust. In April, she will be lacing up her running shoes to take on the London Marathon and raise vital funds and awareness for everyone affected by cystic fibrosis (CF). With the countdown to race day well and truly on, Anna shares some top tips for getting colleagues involved in your fundraising.
Cystic Fibrosis Trust today delivered over 1000 signed prescriptions to No.10 Downing Street, calling on the Prime Minister to urgently review the outdated prescription charges exemption list drawn up in the late 1960s when most people with cystic fibrosis did not live beyond childhood.