CF LIVE

We're bringing together the cystic fibrosis (CF) community, people involved in CF care, researchers and others with an interest in CF for a series of online events. Find out more about CF LIVE and register for the next event.

Through CF LIVE, expert panels will share the latest information and updates from the world of cystic fibrosis. We’ll cover a wide range of subjects and you’ll have the opportunity to be part of the discussion by submitting questions.

6 October 2021 – Spotlighting the development of new treatments for CF, inclusive of all mutations

At this CF LIVE you’ll hear about laboratory studies developing treatments to target alternatives to the CFTR protein and get an update on the (literally) cutting edge world of gene editing. If successful these approaches could lead to more effective treatments, inclusive of those who are not able to take Kaftrio or Kalydeco.

Register here

3 November 2021 – Money Matters: Financial support for students with CF

At this CF LIVE you will hear about support available for students in further and higher education who are living with CF. This will include an outline of the options and support available from education providers, Social Workers and the Cystic Fibrosis Trust

Register here

25 November 2021 – Transplants and CF

Join our expert panel who will be providing information and reassurance through sharing of experiences, as well as busting some common myths about the transplant process. This event is largely aimed at people with CF who are pre-transplant and their families. We will also provide an update on our transplant campaigning work, and there will be an opportunity for you to ask questions during the evening.

Register here

For more information, or if there’s a theme that you’d like us to cover at a future CF LIVE, please email us at conference@cysticfibrosis.org.uk.


Watch recordings of previous events

8 September 2021 – ‘CF STORM: The ground-breaking clinical trial set to change lives’ - CF Trust staff were joined by members of the CF STORM Trial Management Group and Trial Coordinators who explained more about this innovative and exciting trial, which aims to find out if people receiving Kaftrio can safely start to reduce the number of treatments they have to manage as part of their daily healthcare routine. Watch the recording.

24 February 2021 – 'Involvement: the future of cystic fibrosis – how your experience can shape tomorrow' – We were joined by Trust staff, CF researchers, adults with CF, parents, and our CF Ambassadors who shared their knowledge of how Involvement is driving forward CF care, research, new treatments, recognition and support. Watch the recording

Find out how you could join in with future involvement activities

20 January 2021 – 'Physiotherapy and exercise: support, advice and tips on how to stay physically active' – Our expert panel discussed how physiotherapy care and our exercise habits have changed due to COVID, and shared tips to help you stay physically active, and sharing tips and on getting motivated through the winter months. Watch the recording.

4 November 2020 – 'Clinical trials: how you can shape the future of CF medicine' – Dr Retsch-Bogart from the CF Foundation (USA) was joined by CF doctors and people with CF who have participated in clinical trials to talk about the type of emerging therapies we can expect to see progressing through CF clinical trials in the near future. Watch the recording.

HIT-CF was also mentioned during this event. You can find out more about this here.

7 October 2020 – 'How we're working to beat antimicrobial resistance (AMR) in cystic fibrosis' – Our panel of CF researchers discussed what's involved in tackling drug-resistant CF infections and why they're needed. Watch the recording.

23 September 2020 – 'Work and money – know your rights' – Our panel discussed the support available to help adults with CF understand their employment rights, maximise their income and navigate the benefits system. Watch the recording.

19 August 2020 – 'Returning and settling back into education – Our expert panel answered some of your questions about going back to school and discussed the support available. Watch the recording.

5 August 2020 – ‘How your data makes a difference’ – Our Registry team spoke about the importance of your data and how it helps us improve the lives of people with cystic fibrosis. Watch the recording.

8 July 2020 – Kaftrio Community Event – David Ramsden, our Chief Executive, and Dr Keith Brownlee, Director of Policy, Programmes and Support, chaired a live virtual community event about the latest updates on Kaftrio. Watch the recording.

Research we fund

We fund research to tackle some of the most pressing issues in CF today. Find out how your donations are making a difference.

What is CF?

Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are over 10,600 people living with it in the UK.

Contact us

Get in touch with us to speak to someone on our Helpline, find out about an event or speak to our Press Team.

Your donation will make a difference:

Select amount