Clinical Conference 2013

The Cystic Fibrosis Trust's Clinical Conference 2013 - 'Moving forward together in a new era' was a unique two-day event taking place at Manchester Conference Centre in September.

Agenda - day 1

Registration, refreshments and networking

10am Welcome and introduction

Ed Owen, Chief Executive, Cystic Fibrosis Trust 

10.10am Transformational treatments – Correctors and potentiators in the pipeline

Chair: Oli Rayner, Adult with cystic fibrosis

Professor Jane Davies, Reader and Honorary Consultant, Imperial College, London

Professor Stuart Elborn CBE, Adult Physician, Queen's University, Belfast

10.45am Increasing access to lung transplantation

Introduction: Claire Francis, Cystic Fibrosis Trust

Professor Andrew Fisher, Professor of Respiratory Transplant Medicine, University of Newcastle



11.30am Workshops session 1

12.30pm Lunch and opportunity to meet the sponsors

1.40pm Workshops session 2

2.40pm Adherence – The importance of habit formation

Dr Martin Wildman, Honorary Senior Clinical Lecturer Health Services Research, ScHARR, University of Sheffield and Consultant, Respiratory Medicine and Adult CF, Sheffield Adult CF Centre, Northern General Hospital

3.20pm Tea and coffee break

Hot topics

3.40pm Staphylococcus aureus – is prevention better than cure?

Dr Matthew Hurley, Clinical Research Fellow, University of Nottingham

3.55pm Modern assessment of lung disease (presentation)

Dr Alex Horsley, NIHR Clinician Scientist, University of Manchester & Honorary Consultant, Manchester Adult CF Centre

4.10pm Mycobacterium abscessus – detecting and controlling infection

Dr Andres Floto, Wellcome Trust Senior Clinical Fellow and Honorary Consultant Cystic Fibrosis/Lung Defence Unit, Papworth Hospital and Department of Respiratory Medicine, Addenbrooke's Hospital

4.25pm Torpedo project case study (presentation)

Dr Simon Langton Hewer, Consultant Respiratory Paediatrician, Bristol Royal Hospital for Children

4.40pm Closing comments

Ed Owen, Chief Executive, Cystic Fibrosis Trust



4.45pm Close

6pm Drinks reception and dinner

Day 2

10am Registration, refreshments and networking 



10.30am Welcome and introduction from chair 

Ed Owen, Chief Executive, Cystic Fibrosis Trust



10.45 am Working in partnership – proposals for enhanced collaboration between the Cystic Fibrosis Trust, patients and clinicians

Discussion with:

Ed Owen, Chief Executive, Cystic Fibrosis Trust

Dr Diana Bilton, Chair, CF Clinical Reference Group and Consultant Respiratory Physician, Royal Brompton Hospital



11.25 am Improved interpretation of lung function data – The global lung function initiative

Janet Stocks, Professor of Respiratory Physiology, UCL Institute of Child Health



12.20pm Lunch and opportunity to meet the sponsors 



1.30pm Expert review of the UK CF Registry – initial recommendations

Professor Kathy Rowan, Director, ICNARC 



2.20pm Planning in the new commissioning era

Chair: Iolo Doull, Consultant Respiratory Paediatrician, Children's Hospital for Wales

Dr Diana Bilton, Chair, CF Clinical Reference Group and Consultant Respiratory Physician, Royal Brompton Hospital

Mr David Turner, PPE representative, CF Clinical Reference Group

Dr Gordon MacGregor, Consultant Respiratory Physician, Gartnavel General Hospital, Glasgow

3pm The Registry and pharmacovigilance

Noreen Caine, Registry Consultant, Cystic Fibrosis Trust

Elaine Gunn, CF Registry Clinical Data Manager, Cystic Fibrosis Trust

3.15pm Update on research plans

Dr Janet Allen, Director of Research, Cystic Fibrosis Trust

3.30pm Closing comments 

Ed Owen, Chief Executive, Cystic Fibrosis Trust



3.40pm Close