UKCFC 2018 video gallery

Watch the presentations from the UK Cystic Fibrosis Conference.

Open Day 1, session 1, talk 1: Welcome and conference introduction video

Day 1, session 1, talk 1: Welcome and conference introduction

David Ramsden, Chief Executive, welcomes delegates to the 2018 UK Cystic Fibrosis Conference.

Open Day 1, session 1, talk 2: Setting the scene for day one video

Day 1, session 1, talk 2: Setting the scene for day one

Dr Janet Allen sets the scene for day one of the conference.

Open Day 1, session 1, talk 3: Latest developments in the therapeutic pipeline for CF video

Day 1, session 1, talk 3: Latest developments in the therapeutic pipeline for CF

Oli Rayner, Special Advisor for Research and Patient Involvement at the Cystic Fibrosis Trust talks about the latest developments in the therapeutic pipeline for CF.

Open Day 1, session 1, talk 4: Potential disease-modifying new treatments in the pipeline video

Day 1, session 1, talk 4: Potential disease-modifying new treatments in the pipeline

Dr Damian Downey, Clinical Senior Lecturer at Queens University Belfast, discusses the latest information on various transformational treatments in development, triple terminology and a likely timeframe.

Open Day 1, session 1, talk 5: Survival, treatments and transplant: Using the Registry today to inform CF care tomorrow video

Day 1, session 1, talk 5: Survival, treatments and transplant: Using the Registry today to inform CF care tomorrow

Dr Ruth Keogh, Associate Professor of Medical Statistics at the London School of Hygiene and Tropical Medicine, discusses personalised information on survival and forecasting future population trends, understanding the long-term impact of Ivacaftor and learning about the transplant pathway in the UK.

Open Day 1, session 2, talk 1: Putting the person into personalised medicine video

Day 1, session 2, talk 1: Putting the person into personalised medicine

Dr Mandy Bryon, Consultant Clinical Psychologist at Great Ormond Street Hospital, discusses putting the person into personalised medicine.

Open Day 1, session 2, talk 2: Delivery of care for people with CF: Co-designing the future video

Day 1, session 2, talk 2: Delivery of care for people with CF: Co-designing the future

Professor Stuart Elborn, Professor of Respiratory Medicine at Imperial College London & Royal Brompton Hospital, discusses the current model of care, external pressures, the rising number of adults with CF, changing expectations of parents and people with CF and novel solutions.

Open Day 1, session 2, talk 3: How do we ensure the person is at the centre of their care? video

Day 1, session 2, talk 3: How do we ensure the person is at the centre of their care?

Professor Rob Horne, Professor of Behavioural Medicine and Director at the Centre for Behavioural Medicine at UCL School of Pharmacy, asks whether personalised medicine achievable, and discusses the impact on the individual and clinical teams.

Open Day 1, session 3, talk 1: Pulmonary complications of CF video

Day 1, session 3, talk 1: Pulmonary complications of CF

Professor Jane Davies from Imperial College London discusses the pulmonary complications of CF.

Open Day 1, session 3, talk 2: CF MATTERS - Comparing the use of microbiome-directed antibiotic treatment versus standard therapy for patients with CF experiencing respiratory infections video

Day 1, session 3, talk 2: CF MATTERS - Comparing the use of microbiome-directed antibiotic treatment versus standard therapy for patients with CF experiencing respiratory infections

Professor Barry Plant, Consultant Respiratory Physician and Director of the Adult CF centre at Cork University Hospital and Clinical Senior Lecturer at University College, discusses large EU-funded collaboration across Europe to understand pulmonary infection for CF, microbiome analysis and nsights into pulmonary infections following long term ivacaftor therapy.

Open Day 1, session 3, talk 3: Protection against emerging pathogens video

Day 1, session 3, talk 3: Protection against emerging pathogens

Dr Charles Haworth, Director at the Cambridge Centre for Lung Infection, discusses cross-infection, challenges of Mycobacterium abscessus and novel hospital design.

Open Day 1, session 4, talk 1: Regenerative medicine video

Day 1, session 4, talk 1: Regenerative medicine

Professor Steve Hart, Professor in Molecular Genetics at the UCL Institute of Child Health, discusses regenerative medicine.

Open Day 1, session 4, talk 2: CF-related diabetes. Is it possible for the pancreatic islets to regenerate? video

Day 1, session 4, talk 2: CF-related diabetes. Is it possible for the pancreatic islets to regenerate?

Professor James Shaw, Professor of Regenerative Medicine for Diabetes and Honorary Consultant Physician at Newcastle University, discusses the significance of CF-related diabetes, whether loss of pancreatic islets is secondary to pancreatic damage and whether islets can regenerate.

Open Day 1, session 4, talk 3: Gene editing – how do we get from cells in a lab to lungs in a person? video

Day 1, session 4, talk 3: Gene editing – how do we get from cells in a lab to lungs in a person?

Patrick Harrison, Senior Lecturer at the Department of Physiology at University College Cork, Ireland, discusses the long-term goal to find the pathway to a CF ‘cure’ harnessing gene editing to deliver over the next 10 years, small molecule treatments, and what are the bottle necks to therapies.

Open Day 2, session 1, talk 1: Welcome and day two introduction video

Day 2, session 1, talk 1: Welcome and day two introduction

Richard Hunt CBE, Chair of Trustees at the Cystic Fibrosis Trust, introduces day two of the UK Cystic Fibrosis Conference.

Open Day 2, session 1, talk 2: Our three-year strategy video

Day 2, session 1, talk 2: Our three-year strategy

David Ramsden, Chief Executive of the Cystic Fibrosis Trust, presents how the Cystic Fibrosis Trust's three-year strategy is responding to the needs and demands of the CF community.

Open Day 2, session 2, talk 1 and panel: Pathways to new medicines and the value of new medicines video

Day 2, session 2, talk 1 and panel: Pathways to new medicines and the value of new medicines

Professor Jane Davies of Imperial College London discusses pathways to new medicines and explores and explains the current drugs pipeline and the upcoming challenges. Following, is a panel discussion on the value of new medicines.

Open Day 2, session 3, talk 1: The future of care video

Day 2, session 3, talk 1: The future of care

Dr Keith Brownlee, Director of Policy, Programmes & Support at the Cystic Fibrosis Trust, discusses the future of CF care, followed by a panel discussion.

Open Day 1, session 4, talk 1: Cystic fibrosis and the 'real world' video

Day 1, session 4, talk 1: Cystic fibrosis and the 'real world'

Interactive presentation/live podcast by Will Marler covering different experiences of day-to-day life with CF and the range of information and support issues faced by people with cystic fibrosis.

Open Day 2, session 4, talk 2: Closing comments video

Day 2, session 4, talk 2: Closing comments

Closing comments from Richard Hunt CBE, Chair of Trustees at the Cystic Fibrosis Trust.

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Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are over 10,600 people living with it in the UK.

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