UKCFC 2019

Watch all the content you missed at the 2019 UK Cystic Fibrosis Conference. We've also answered some of the questions you asked on Slido that our presenters didn't have time to answer on the day!

Open Day 1: Welcome and conference introduction video

Day 1: Welcome and conference introduction

David Ramsden, Chief Executive, and Dr Janet Allen, Director of Strategic Innovation, welcome delegates to the 2019 UK Cystic Fibrosis Conference.

Open Day 1, session 1, talk 1: Development of new therapies for cystic fibrosis video

Day 1, session 1, talk 1: Development of new therapies for cystic fibrosis

Dr Mike Gray - New therapies for cystic fibrosis are under development, and some of these therapies may improve the way existing precision medicines work or cause them to work in a novel and different way. In this session we’ll hear from two companies with different approaches, including therapies that may work for anyone irrespective of their genotype.

Open Day 1, session 1, talk 2: Replace instead of repair: novel therapeutics for all CF patients video

Day 1, session 1, talk 2: Replace instead of repair: novel therapeutics for all CF patients

Professor Martin Gosling PhD, Chief Scientific Officer, Enterprise Therapeutics

Open Day 1, session 1, talk 3: Access and the unmet need: Novel CFTR modulator combinations are coming video

Day 1, session 1, talk 3: Access and the unmet need: Novel CFTR modulator combinations are coming

Dr Marija Zecevic, Proteostasis

Open Day 1, session 2, talk 1: SmartCareCF video

Day 1, session 2, talk 1: SmartCareCF

Professor Andres Floto (Royal Papworth Hospital) and Sammie Read

Open Day 1, session 2, talk 2: CLIMB-CF video

Day 1, session 2, talk 2: CLIMB-CF

Professor Jane Davies and Dr Claire Edmondson (Royal Brompton Hospital) and Uisdean McKenzie

Open Day 1, session 2, talk 3: Predicting pulmonary exacerbations video

Day 1, session 2, talk 3: Predicting pulmonary exacerbations

John Winn, Microsoft Research Institute, Cambridge

Open Day 1, session 2, talk 4: Next steps, Project Breathe video

Day 1, session 2, talk 4: Next steps, Project Breathe

Kirsty Hill (Magic Bullet) and Mark Edwards

Open Day 1, session 2, talk 5: Innovative ways to reduce burden of care video

Day 1, session 2, talk 5: Innovative ways to reduce burden of care

Q&A panel discussion

Open Day 1, session 3, talk 1: Advances in video imaging of cilia motility with applications in CF video

Day 1, session 3, talk 1: Advances in video imaging of cilia motility with applications in CF

Professor Pietro Cicuta, University of Cambridge

Open Day 1, session 3, talk 2: Exploring a new approach to tackling fungal infections video

Day 1, session 3, talk 2: Exploring a new approach to tackling fungal infections

Dr Darius Armstrong-James, Imperial College London

Open Day 1, session 3, talk 3: Why does Pseudomonas like the CF lung? video

Day 1, session 3, talk 3: Why does Pseudomonas like the CF lung?

Dr Martin Welch, University of Cambridge

Open Day 1, session 3, talk 4: CF syndicate in Antimicrobial Resistance, Medicines Discovery Catapult video

Day 1, session 3, talk 4: CF syndicate in Antimicrobial Resistance, Medicines Discovery Catapult

Jessica Lee and Dr Paula Sommer

Open Day 1, session 3, talk 5: A showcase of Cystic Fibrosis Trust-funded research video

Day 1, session 3, talk 5: A showcase of Cystic Fibrosis Trust-funded research

Q&A panel discussion

Open Day 1, session 4, talk 1: Plenary video

Day 1, session 4, talk 1: Plenary

Dr Lisa Strug, Sick Kids Toronto

Open Day 1, session 4, talk 2: First UK CF Innovation Hub based at the University of Cambridge video

Day 1, session 4, talk 2: First UK CF Innovation Hub based at the University of Cambridge

Professor Andres Floto

Open Day 1, session 4, talk 3: Personalised medicine video

Day 1, session 4, talk 3: Personalised medicine

Q&A panel discussion

Open Day 2: Welcome video

Day 2: Welcome

Oli Lewington, Director of Marketing and Communications at the Cystic Fibrosis Trust

Open Day 2, session 1, talk 1: Day one recap video

Day 2, session 1, talk 1: Day one recap

Members of the Trust’s research team reflect on day one of UKCFC, providing updates on: the development of new therapies for cystic fibrosis, innovative ways to reduce the burden of care, Trust-funded research and personalised medicines of the future.

Open Day 2, session 2, talk 1: The challenges and opportunities of getting older with CF video

Day 2, session 2, talk 1: The challenges and opportunities of getting older with CF

A virtual conversation between two people with CF about their lived experience of and concerns about getting older with cystic fibrosis and all the challenges, concerns and happiness it brings.

Open Day 2, session 3, talk 1: The changing face of CF treatment and its impact on emotional wellbeing video

Day 2, session 3, talk 1: The changing face of CF treatment and its impact on emotional wellbeing

Michèle Puckey, Paediatric Clinical Psychologist, Royal Brompton Hospital, discusses the psychological impact of the potential for transformation treatments to change the future of cystic fibrosis.

Open Day 2, session 4, talk 1: Packing a punch, the importance of impact video

Day 2, session 4, talk 1: Packing a punch, the importance of impact

Highlighting the collaborative relationship between supporters and the Cystic Fibrosis Trust and showing the impact their dedication has on the Trust’s ability to do the work it does.

Open Day 2, session 4, talk 2: Conference close video

Day 2, session 4, talk 2: Conference close

Richard Hunt CBE, Cystic Fibrosis Trust Chairman

Open Day 2, workshop 1: Positive parenting and resilience video

Day 2, workshop 1: Positive parenting and resilience

Led by Dr Mandy Bryon, Consultant Clinical Psychologist and Head of Psychological Services, Great Ormond Street Hospital and Helen Oxley, Consultant Clinical Psychologist, Manchester Adult Cystic Fibrosis Centre. Facilitated by Michèle Puckey, Royal Brompton Hospital and Dr Samantha Phillips, Bristol Children’s Hospital.

Open Day 2, workshop 2: Polypharmacy within cystic fibrosis and moving towards deprescribing video

Day 2, workshop 2: Polypharmacy within cystic fibrosis and moving towards deprescribing

Led by Elaine Bowman Specialist pharmacist, respiratory medicine, Royal Brompton and Harefield NHS Trust and Michael Dooney, CF pharmacist, Blackpool Adult CF Service and Manchester Adult CF Centre.

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What is CF?

Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are over 10,600 people living with it in the UK.

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