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Cystic Fibrosis Trust
Forum

UKCFC 2019 video gallery

Day 1: Welcome and conference introduction

09 October 2019

David Ramsden, Chief Executive, and Dr Janet Allen, Director of Strategic Innovation, welcome delegates to the 2019 UK Cystic Fibrosis Conference.

Day 1, session 1, talk 1: Development of new therapies for cystic fibrosis

10 October 2019

Dr Mike Gray - New therapies for cystic fibrosis are under development, and some of these therapies may improve the way existing precision medicines work or cause them to work in a novel and different way. In this session we’ll hear from two companies with different approaches, including therapies that may work for anyone irrespective of their genotype.

Day 1, session 1, talk 2: Replace instead of repair: novel therapeutics for all CF patients

10 October 2019

Professor Martin Gosling PhD, Chief Scientific Officer, Enterprise Therapeutics

Day 1, session 1, talk 3: Access and the unmet need: Novel CFTR modulator combinations are coming

10 October 2019

Dr Marija Zecevic, Proteostasis

Day 1, session 2, talk 1: SmartCareCF

10 October 2019

Professor Andres Floto (Royal Papworth Hospital) and Sammie Read

Day 1, session 2, talk 2: CLIMB-CF

10 October 2019

Professor Jane Davies and Dr Claire Edmondson (Royal Brompton Hospital) and Uisdean McKenzie

Day 1, session 2, talk 3: Predicting pulmonary exacerbations

10 October 2019

John Winn, Microsoft Research Institute, Cambridge

Day 1, session 2, talk 4: Next steps, Project Breathe

10 October 2019

Kirsty Hill (Magic Bullet) and Mark Edwards

Day 1, session 2, talk 5: Innovative ways to reduce burden of care

10 October 2019

Q&A panel discussion

Day 1, session 3, talk 1: Advances in video imaging of cilia motility with applications in CF

10 October 2019

Professor Pietro Cicuta, University of Cambridge

Day 1, session 3, talk 2: Exploring a new approach to tackling fungal infections

10 October 2019

Dr Darius Armstrong-James, Imperial College London

Day 1, session 3, talk 3: Why does Pseudomonas like the CF lung?

10 October 2019

Dr Martin Welch, University of Cambridge

Day 1, session 3, talk 4: CF syndicate in Antimicrobial Resistance, Medicines Discovery Catapult

10 October 2019

Jessica Lee and Dr Paula Sommer

Day 1, session 3, talk 5: A showcase of Cystic Fibrosis Trust-funded research

10 October 2019

Q&A panel discussion

Day 1, session 4, talk 1: Plenary

10 October 2019

Dr Lisa Strug, Sick Kids Toronto

Day 1, session 4, talk 2: First UK CF Innovation Hub based at the University of Cambridge

10 October 2019

Professor Andres Floto

Day 1, session 4, talk 3: Personalised medicine

10 October 2019

Q&A panel discussion

Day 2: Welcome

10 October 2019

Oli Lewington, Director of Marketing and Communications at the Cystic Fibrosis Trust

Day 2, session 1, talk 1: Day one recap

10 October 2019

Members of the Trust’s research team reflect on day one of UKCFC, providing updates on: the development of new therapies for cystic fibrosis, innovative ways to reduce the burden of care, Trust-funded research and personalised medicines of the future.

Day 2, session 2, talk 1: The challenges and opportunities of getting older with CF

10 October 2019

A virtual conversation between two people with CF about their lived experience of and concerns about getting older with cystic fibrosis and all the challenges, concerns and happiness it brings.

Day 2, session 3, talk 1: The changing face of CF treatment and its impact on emotional wellbeing

10 October 2019

Michèle Puckey, Paediatric Clinical Psychologist, Royal Brompton Hospital, discusses the psychological impact of the potential for transformation treatments to change the future of cystic fibrosis.

Day 2, session 4, talk 1: Packing a punch, the importance of impact

10 October 2019

Highlighting the collaborative relationship between supporters and the Cystic Fibrosis Trust and showing the impact their dedication has on the Trust’s ability to do the work it does.

Day 2, session 4, talk 2: Conference close

10 October 2019

Richard Hunt CBE, Cystic Fibrosis Trust Chairman

Day 2, workshop 1: Positive parenting and resilience

10 October 2019

Led by Dr Mandy Bryon, Consultant Clinical Psychologist and Head of Psychological Services, Great Ormond Street Hospital and Helen Oxley, Consultant Clinical Psychologist, Manchester Adult Cystic Fibrosis Centre. Facilitated by Michèle Puckey, Royal Brompton Hospital and Dr Samantha Phillips, Bristol Children’s Hospital.

Day 2, workshop 2: Polypharmacy within cystic fibrosis and moving towards deprescribing

10 October 2019

Led by Elaine Bowman Specialist pharmacist, respiratory medicine, Royal Brompton and Harefield NHS Trust and Michael Dooney, CF pharmacist, Blackpool Adult CF Service and Manchester Adult CF Centre.

Research we're funding

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.