When a person with cystic fibrosis dies, we can provide a grant of £750 to help with funeral costs. Grants are usually processed within 10 days of receiving a completed application, and we can pay the grant to funeral directors directly if this is more convenient.
How do I apply?
We aim to make it as easy as possible for bereaved families to apply for this grant at such a difficult time. Please read the guidance on this page and contact our helpline with any questions or for support in applying for the grant.
If you feel you have all the information you need, please download the application form.
Please email applications to [email protected] if you can.
How much can I apply for?
These grants are £750 to help with funeral costs.
Does the application form need to be endorsed?
The application needs to be endorsed by a professional who was involved in the medical care of the person who has died and either signed by them or emailed to us from their professional email account.
If this is proving difficult please contact us.
When will I receive the grant?
These grants are processed weekly. If the application is successful, payment will be made within 10 days of receiving a complete application. We will pay the grant directly into the bank account provided. We can also pay the funeral directors directly if preferred.
I have a question, can I speak to someone?
We have a number of information resources to support you if you know someone with cystic fibrosis who has died, including a booklet for parents who have lost a child and a booklet for children who have lost a parent. Take a look at our bereavement resources and find out about further support.
Other organisations providing support
There may be certain bereavement benefits you can apply for following the death of your spouse or partner. Which benefits and how much you qualify for will depend on your circumstances.
The Children’s Funeral Fund in England can help to pay for some of the funeral costs for a child under 18, or a baby stillborn after the 24th week of pregnancy. It is not means-tested: what you earn or how much you have in savings will not affect what you get. The burial or cremation must take place in England.
Funeral Expenses Payments are provided by the Department for Work and Pensions (DWP) to help with the cost of a funeral for a close family member. You can apply if you are on certain means-tested benefits. Contact the DWPs’ Bereavement Service helpline 0800 731 0469.
Research we fund
We fund research to tackle some of the most pressing issues in CF today. Find out how your donations are making a difference.
What is CF?
Cystic fibrosis, or CF, affects the lungs, digestive system and other organs. There are over 11,000 people living with it in the UK.
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