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Cystic Fibrosis Trust

UK distribution of cystic fibrosis

Take a look at our map showing how the cystic fibrosis (CF) population is distributed across the country, using anonymised data from 2014 from the UK Cystic Fibrosis Registry.

We hope this map will be useful for people with cystic fibrosis and their families, as well as cystic fibrosis care teams, researchers, NHS commissioners and policy makers. 

How to use the map

The charts show the number of people with cystic fibrosis in each county, both as a map and a table. Click on the counties shown on the map to see the distribution of age and gender of people with CF in that region.

Counties are shaded according to the number of people with CF in that location; white means fewer than five people with CF live in that region, and darker yellow means counties with higher numbers.

After viewing a county, you can return to the full UK view by clicking the same county again, or by clicking on any county twice.

If you have any problems viewing the map, take a look at the frequently asked question below to ensure your web browser meets the minimum requirements.

Frequently asked questions

Why are there fewer people with cystic fibrosis on this map than in the Annual Data Report 2014?

The UK CF Registry Annual Data Report 2014 reports that there were 10,583 people with cystic fibrosis in the UK in 2014, 9432 of whom had an annual review that year. We only used the data of people who had an annual review in 2014 to ensure the information we used was up to date. Of those 9432, we only used people who had a valid UK postcode that could be mapped to a county. 

For data protection reasons, the table excludes any counties with fewer than five people with cystic fibrosis, and the map excludes any counties with fewer than 15 people. This means that 197 people were excluded of the 9,432 who had annual reviews recorded in the Registry that year.

How exact are the numbers?

For data protection reasons, only the first half of postcodes were used to generate this map. This, along with the fact that boundaries often change, means the allocation into each county is approximate. To see where people with cystic fibrosis receive treatment, please see the Annual Report Data 2014. 

Can I reference the numbers elsewhere?

These numbers are in the public domain and free to use, as long as ‘UK CF Registry 2014’ is referenced. We’d love to hear how the map is being used, so please email registry@cysticfibrosis.org.uk to let us know where and when you are referencing the information. 

Why can’t I see my county?

We don’t show counties on the map if the CF population is less than 15, or in the table if it is less than five. If your county isn’t listed in the table it is likely there are less than five people with CF in the county. If you think we’ve made a mistake please email registry@cysticfibrosis.org.uk

How do I give feedback?

We’d love to hear what you think about this map, including anything you think we can improve on, or additional charts you’d like to see. Please email your thoughts to registry@cysticfibrosis.org.uk.

Why isn't the map working?

If you do not have an up-to-date version of one of the following browsers you may have difficulty viewing the map, or be unable to see it.

Supported browsers:
  • Microsoft Edge
  • Internet Explorer 11
  • Chrome Desktop
  • Safari Mac
  • Firefox Desktop
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