Reporting and resources
Cystic fibrosis (CF) care teams enter data to the UK CF Registry at every specialist centre and clinic across the UK, with over 99% of people with CF consenting to their data being submitted.
Registry results are published each year in the annual report. Detailed and at-a-glance versions of the report are produced, both designed to be accessible to people with cystic fibrosis and their families, as well as their healthcare teams. The detailed report includes data about individual cystic fibrosis centres, to help the centres benchmark themselves against their peers, and provide people with cystic fibrosis information that applies to their specific care team.
2023 Annual Data Report
Explore the 2023 UK CF Registry Annual Data Report for a closer look at the latest insights into the health of people living with cystic fibrosis across the UK.
2023 data: at a glance
Take a look at the key highlights from the 2023 Registry Annual Report with our quick guide to this year's most impactful data and insights.
Download the key information now
2023 Annual Data Report Scotland
CF Registry Annual Data Report the latest insights into the health of people living with cystic fibrosis in Scotland.
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Past UK CF Registry reports
Read all of the UK CF Registry's annual reports, at-a-glance reports and Scotland reports from 2004 onwards.
2022
2021
2020
2019
2018
2017
2016
2015
2014
2013
2012
2011
2010
2009
- 2009 report
- 2009 summary
- FAQs document for 2009
2008
2007
2004
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COVID-19 in people with CF
The UK CF Registry is monitoring cases of COVID-19 in people with cystic fibrosis. Take a look at the current UK statistics for people with CF affected by COVID-19. We will update this information weekly to add new cases reported to the Registry.
FAQs
Public awareness of cystic fibrosis is low; here's your chance to find out the answers to the most commonly asked questions and discover further resources.
In the news
Check out the latest news about cystic fibrosis, from new developments in research to nationwide campaigns, including local, national and international stories.
Clinical Trials Accelerator Platform
Find out how we're increasing access to clinical trials for people with CF across the UK.