Reporting and resources

Cystic fibrosis (CF) care teams enter data to the UK CF Registry at every specialist centre and clinic across the UK, with over 99% of people with CF consenting to their data being submitted.

registry reports

Registry results are published each year in the annual report. Detailed and at-a-glance versions of the report are produced, both designed to be accessible to people with cystic fibrosis and their families, as well as their healthcare teams. The detailed report includes data about individual cystic fibrosis centres, to help the centres benchmark themselves against their peers, and provide people with cystic fibrosis information that applies to their specific care team.

Read the 2022 Registry annual data report

The UK CF Registry annual data report for 2022 is available to download here. The 2022 at-a-glance report, which provides a summary of the key points, is available here. The 2022 report for Scotland is available here.

Download the full report now


Public awareness of cystic fibrosis is low; here's your chance to find out the answers to the most commonly asked questions and discover further resources.

In the news

Check out the latest news about cystic fibrosis, from new developments in research to nationwide campaigns, including local, national and international stories.

Clinical Trials Accelerator Platform

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