Reporting and resources

Cystic fibrosis (CF) care teams enter data to the UK CF Registry at every specialist centre and clinic across the UK, with over 99% of people with CF consenting to their data being submitted.

Registry reports thumbnail image

Registry results are published each year in the annual report. Detailed and at-a-glance versions of the report are produced, both designed to be accessible to people with cystic fibrosis and their families, as well as their healthcare teams. The detailed report includes data about individual cystic fibrosis centres, to help the centres benchmark themselves against their peers, and provide people with cystic fibrosis information that applies to their specific care team.

2023 Annual Data Report

Explore the 2023 UK CF Registry Annual Data Report for a closer look at the latest insights into the health of people living with cystic fibrosis across the UK.

Download the full report now

2023 data: at a glance

Take a look at the key highlights from the 2023 Registry Annual Report with our quick guide to this year's most impactful data and insights.

Download the key information now

FAQs

Public awareness of cystic fibrosis is low; here's your chance to find out the answers to the most commonly asked questions and discover further resources.

In the news

Check out the latest news about cystic fibrosis, from new developments in research to nationwide campaigns, including local, national and international stories.

Clinical Trials Accelerator Platform

Find out how we're increasing access to clinical trials for people with CF across the UK.

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