COVID-19 in people with cystic fibrosis

The UK Cystic Fibrosis Registry has been working closely with clinical teams to monitor COVID-19 in people with cystic fibrosis (CF) across the UK. These are the current statistics reported to the UK CF Registry on COVID-19 in people with CF. This information will be updated every month. 

Figures are for cases reported from May 2021.

UK statistics on COVID-19 in people with CF

The cases of COVID-19 in people with CF reported to the UK CF Registry are as follows:

  • Number of cases: 336
  • Number of reported cases diagnosed May 2021: 2
  • Age range: 0–68
  • FEV1% predicted range: 11–135
  • Per cent with no symptoms when tested: 35
  • Number receiving inpatient treatment for ongoing infection: 0
  • Number of COVID-19 related deaths: 2

One year on from the start of the global pandemic, we are now collecting COVID-19 data routinely into specially created fields in the UK CF Registry. This is designed to take pressure off clinical teams and ensure that the information is fully integrated with other clinical data. This means there is now a short time-lag in data collection.

Because of this, and because numbers of infections are currently low, we will report up to the end of the previous month (ie. on 31 May, a report up to and including 30 April 2021 will be issued on the website accordingly). We will continue to review this and adapt reporting timeframes under advice from the UK CF Medical Association (UKCFMA) if needed.

If you need information and support about COVID-19 and CF, take a look at our coronavirus help and advice, or contact our Helpline

Global study on COVID-19 and CF

Data from a global CF Registry collaboration has shown the number of people with CF who have become seriously ill or died COVID-19 is low worldwide. You can read more about the results and access the report in our news story.

This new report expands on previous findings announced in April 2020.

We are also contributing to the European Cystic Fibrosis Society Patient Registry’s COVID-19 monitoring. Read more about the COVID-CF project in Europe.

FAQs

Check out the most commonly asked questions about cystic fibrosis and find the answers you need.

Coronavirus help and advice

Find all the information and support about shielding, finances and welfare, your CF care, and mental and physical health, all in one place.

In the news

Check out the latest news about cystic fibrosis, from new developments in research to nationwide campaigns, including local, national and international stories.

Your donation will make a difference:

Select amount