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COVID-19 in people with cystic fibrosis

The UK Cystic Fibrosis Registry has been working closely with clinical teams to monitor COVID-19 in people with cystic fibrosis (CF) across the UK. These are the current statistics reported to the UK CF Registry on COVID-19 in people with CF. This information will be updated weekly. 

Figures are for cases reported from 1 March to 27 July 2020.

UK statistics on COVID-19 in people with CF

The numbers in the UK are too low to draw conclusions about risk factors or outcomes associated with COVID-19 in cystic fibrosis. We are collaborating globally to learn as much as possible, as quickly as possible.

Among the 28 people with CF reported to the UK CF Registry as having COVID-19, 26 recovered from the infection and one person is still receiving treatment. Sadly one adult with CF has died of complications related to COVID-19. To protect confidentiality, and out of respect for the family at this very difficult time, we are not releasing any further information about this person.

The cases of COVID-19 in people with CF reported to the UK CF Registry are as follows:

Number of cases
28
 Age range 9–57
 FEV1% predicted range 18–116
 % with no symptoms when tested 39
 Number recovered from COVID-19 26
Number receiving treatment for ongoing infection  1
 Number of COVID-19 related deaths 1

The UK CF Medical Association have released the following statement:

"Data collected by the CF Trust Registry suggests that COVID-19 infection causes a similar range of problems in people with CF to that seen in the rest of the population. Those with more advanced disease are at greater risk of severe complications in the same way that non-CF individuals who have other co-morbidities are also at greater risk.

"It has just been reported to us that an adult with CF has died of complications related to COVID-19 infection. Our thoughts are with their friends and relatives. This sad news underlines the importance of the shielding measures that are currently in place to try and prevent as many people with CF as possible from getting COVID-19 infection. Continue doing what you can to stay safe, keep up with all of your regular treatments and contact your CF team straight away if you feel unwell."

If you need information and support about COVID-19 and CF, take a look at our coronavirus help and advice, or contact our Helpline

Global study on COVID-19 and CF

A global collaboration has published early results of COVID-19 cases in people with CF from around the world. The data suggests encouraging health outcomes for people with CF who have had COVID-19. You can read more about the results and access the report in our news story.

We are also contributing to the European Cystic Fibrosis Society Patient Registry’s COVID-19 monitoring. Read more about the COVID-CF project in Europe


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