Your Life and CF 2023

This week we published our report, Your Life and CF 2023, outlining the additional costs and challenges of living with CF. The report indicated that 87% of people affected by CF and their loved ones were concerned about the additional costs of living with the condition, and 1 in 5 people missed hospital appointments due to the cost. You can read the full report here.

Now we need you to raise your voice ahead of CF week, which is being held on the 12-18 June.

Help us to raise awareness by asking your parliamentarians to support CF week. Please take 10 minutes to email your parliamentarian and share your own story of living with the additional costs such as prescription charges, travel costs, sick pay or benefits.  

You can cut and paste our quick and easily adaptable email template here.

It would be great if you could take the time to fill out the short form below.

Your life and CF

In completing this form, you consent that the Cystic Fibrosis Trust will store and process the information provided above in accordance with our privacy policy unless you have told us otherwise. Read our privacy policy.

We’d love to keep you updated about our work and how you can help, including petitions or fundraising activities. In order to send you emails about our work or to contact you by text message, we need your permission. Please let us know how you’d like to be contacted and say yes to getting involved in the fight for a life unlimited by cystic fibrosis. You can also call 020 3795 2177 or email [email protected]

We will not share your details with anyone else, unless otherwise stated and in accordance with our privacy policy.

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