Book of Remembrance
Our Book of Remembrance is a special place to remember those we love who are never forgotten. To add your loved one's name to our Book of Remembrance, please fill in our online form. For further information, please contact our In Memory Officer, Susan at [email protected].
Book of Remembrance
Our Book of Remembrance provides a beautiful and lasting memorial to those who have died and had cystic fibrosis. The book has four volumes covering the 60 years since Cystic Fibrosis Trust began in 1964. Beautifully bound and inscribed by professional calligraphers it contains a permanent inscription to remember a loved one. Relatives and friends can request to add their loved one’s name, date of birth and death. The inscription page within each volume documents the advancements that have been made in CF since the previous volume and reflects the situation at the time of each book opening.
Our Book of Remembrance is kept at the offices of Holy Trinity Church in South Kensington and private viewings can be arranged by appointment. We understand that the location of the book may not be convenient for everyone, so we’re pleased to offer to send you a photo of your loved one’s entry once it’s been included.
Regardless of when your loved one died, we’re able to update the relevant volume of the book to include their name, and there’s no charge for inclusion. If you’re unsure whether a name has already been added, please inform us and we’ll be happy to check for you.
If you have any questions about our Book of Remembrance or about remembering a loved one, please contact our In Memory Officer Susan at [email protected].
It is important for me to have Sam’s name in the book because it lets me know that he’s not been forgotten. It’s heartwarming to know that he is forever memorialised, even long after my immediate family is gone; he’ll still be in this book. I am grateful that the book exists so that he is honoured with all the other brave people that had to deal with cystic fibrosis.
– Natalie, whose brother Sam died and had cystic fibrosis
Our online dedication wall
Our dedication wall is a special place to remember and celebrate your loves one's life by sharing a memory with a photo or just a message. This dedicated space allows you to honour your loved one in your own words. You can post your memory here or if you need any help in doing this, please contact our In-Memory Officer, Susan at [email protected].
Tribute funds
We understand the importance of remembering someone special, and sharing memories of those we love. Our tribute funds are a place to remember someone and share memories, photographs and videos that will last a lifetime.
Find support
There's loads of support available for people with cystic fibrosis and their families, from grants to help with benefits.
How to include a gift
Find out how you can include a gift in your will to the Trust, how you can tell us if you've already included a gift and how to include a gift if you've already written a will.