Issues that may be affecting you

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Issues that may be affecting you

If you're struggling, we're here to help.

If you're struggling with one of these issues, or something else, we're here to help.

Creon shortages

Some people with CF have been experiencing short-term interruptions in the supply of Creon. Find out more about the situation and what we're doing to help.

NICE appraisal

NICE is currently running a formal appraisal process on the cost-effectiveness of Kaftrio, Orkambi and Symkevi. 

Cost of living

Get all the latest information, support and guidance about the cost of living with CF.

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Here to help

If you’re struggling with any aspect of cystic fibrosis, we’re here to help. Contact our Helpline for support, a listening ear or just someone to talk to.


How we can support you

Whatever you’re going through, we have a range of information and services to help lighten the load.

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