Current issues

You may have heard about Alyftrek, a new triple combination modulator therapy made up of tezacaftor, one of the modulators used in Kaftrio, as well as two new modulators called vanzacaftor and deutivacaftor. Alyftrek is currently undergoing NICE appraisal.

Find out more about Alyftrek

Some people with CF have been experiencing interruptions in the supply of Creon. Find out more about the situation and what we're doing to help.

Creon is a vital medicine for many people with CF. Although Creon is still regularly coming into the UK, the supply issues may unfortunately continue for a while. We're working with everyone involved to highlight how important Creon is and to try to reduce the impact of these issues on people with CF. 

Learn more about the Creon supply shortages

From 26 May 2024 Philips discontinued the I-neb nebuliser device. This means they will no longer be available to people who do not have one already. It will also impact maintenance of existing I-neb devices and access to consumables such as the chamber and discs used in the device. 

We understand that many people with CF use I-neb nebuliser devices and this news may be unsettling. We have answered some questions about what the discontinuance means for people with CF.

Read our information about the I-neb nebuliser device situation

We know that the cost of living crisis is a concern for many in our community. We've put together the latest information, support and guidance about the cost of living with CF. 

Read more about cost of living information and support

Autumn and winter can be a challenging time, especially for people with cystic fibrosis and their families. The colder months can bring health risks and added financial stress, but with good preparation it’s possible to ease some of those worries and reduce risks to health.

Learn more about staying well over winter