CF7: Designing CF antibiotics, returning to school, and benefit tips

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Welcome to CF7. Each Friday we share seven pieces of cystic fibrosis (CF) news, resources and community stories from the week.

1. How we’re working to overcome antimicrobial resistance

We published our Research Blast on antimicrobial resistance article this week. It explains research we’re funding on one way to break antimicrobial resistance and how the latest techniques are being used to design new CF antibiotics. 

2. Access to medicine for all

As we wait for the official EMA licence for the triple therapy, Kaftrio, this week we again reached out to the Isle of Man, Guernsey, and Jersey to ask for an update on their negotiations for this life-saving drug and offer our support. We want all eligible people with CF across the UK and the crown dependencies to have access to this drug as soon as possible. Check out our campaign timeline.

3. Stuart’s virtual running challenge

This week we shared a blog from Stuart who’ll be taking part in our Running Festival this September. Like many, Stuart’s event plans changed this year, so he decided to turn his attention to virtual running. Learn more about how he managed this while shielding and find out how you can get involved.

4. CF LIVE: Returning and settling back into education

Schools in Scotland reopened this week and many more will open across the UK in the next few weeks. Register now to join our expert panel as we address some of your questions and concerns and discuss what support is available. We have also put together some information to support you as schools re-open here.

5. End of shielding in Wales

Shielding is due to pause in Wales from Sunday 16 August, and we understand that with this comes much uncertainty and questions for many of you. Our website has information and advice on how you and your family can adjust to life after shielding.

6. Support for PIP telephone assessments

Our welfare team can provide support with a range of benefits including personal independence payment (PIP). We recently published a factsheet on telephone assessments for PIP, which outlines how to prepare, what to expect from the assessment and what happens afterwards, as well as some useful tips.

7. Clinical Trials Annual Survey

Our annual survey collecting people’s thoughts around taking part in clinical trials is now open – please take 15 minutes to complete the survey if you are living with CF (adult or parent) or share with your patients if you are CF Healthcare professional.

We are facing a substantial drop in our fundraising income, at a time when we're seeing an enormous increase in demand for our services. Please consider making a donation to help us continue our work to support people with cystic fibrosis.

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