“Let’s make sure that no one with CF has to leave a pharmacy in tears again": Jade's story

The year I turned 19, I was in my first year at university. I had just about found my feet, managing my complex and exhausting chronic health condition independently for the first time in my life, whilst also studying full-time. The day my friendly campus pharmacist told me that he would have to start charging me for my prescriptions, his voice quiet and his eyes unable to meet mine, it felt like I was being punished with yet another hurdle. I had forgotten about this archaic rule, being so focused on trying to simply live my life and stay well. That day, I left without my essential medications and I went home in tears.

Everywhere I go, people are shocked and incredulous that I have to pay for my prescriptions. Friends, strangers, even healthcare providers – everyone can see the injustice. The cost of an annual £108.10 pre-payment certificate feels like a kick in the teeth, like I’m paying to stay alive; a reminder that I am a burden, though I never chose to have this condition.

It’s only right that the outdated exemption rules are reconsidered, to acknowledge that people with CF are now living into their 40s, 50s and beyond.

I urge the government to review the prescription exemption in England and ask that free prescriptions are made available to those with CF, so that no other young person living with this condition has to leave a pharmacy in tears again.

The Trust is calling for a review of the outdated prescription charges exemption list in England and for all people with cystic fibrosis to be included so that they receive their vital prescriptions free of charge.

Share your story with your local MP and ask them to attend Wednesday's debate to speak on your behalf.

We've created a template for you to use when emailing them - but make sure you tell them why this issue is important to you or your family member.

Download the template