Our campaign for better access to latest diabetes tech

Latest data from the UK CF Registry shows that around a third of those aged 10 and over (33.5%) with CF also live with cystic fibrosis diabetes (CFD).

Managing CFD adds to the daily demands of living with CF. Alongside other treatments, people must monitor their blood glucose and make decisions about insulin, often with unpredictable results.

Technology that already helps people with type 1 diabetes could ease some of this pressure for people with CF, but access to these insulin pumps is inconsistent. 

Ahead of World Diabetes Day on 14 November, we’re highlighting our campaign for fairer access to hybrid closed-loop (HCL) insulin systems. In this blog, we set out what we’re asking for and how we’re taking our calls to Government.

A clearer route to access

HCL systems link a continuous glucose monitor with an insulin pump to automatically adjust insulin delivery. For people with type 1 diabetes, these can make a big difference, helping keep blood glucose within a healthy range and reducing the effort and worry involved in managing diabetes each day.

But most people with CFD cannot access this technology. This is unfair, and we want to see it changed.

We’re calling on governments across the UK to ensure clear, funded routes so that everyone with CFD who could benefit from a HCL system can get one.

We’re also calling for clearer guidance on access while longer-term plans are considered. People living with CFD need to know what options are available to them now.

Taking the case to decision makers

We’re writing to the Health ministers in England, Scotland, Wales and Northern Ireland. We’ve also shared our new briefing,  setting out why change is needed, with MPs in the All-Party Parliamentary Group for Diabetes. Parliamentary support can help bring attention to gaps in care and put pressure on those responsible to address them.

We’re seeking answers about the steps needed to make access more consistent. 

Across Scotland, Wales and Northern Ireland, we will be contacting elected representatives with requests that are specific to their health systems. Our aim is the same across all four nations: fair access to diabetes technology.

Next steps 

World Diabetes Day is an opportunity to build support. We’ll be following up with parliamentarians and health leaders to make meaningful change that could make managing CFD easier.

The experiences of people living with CFD are central to this campaign. Alongside our evidence and letters, we’re highlighting personal stories to help more people understand what managing CFD involves and why better access matters. If you'd like to share your experience, please email [email protected].

Read our briefing on access to hybrid closed-loop systems for people with CFD

How to get support

If you have questions about CF diabetes, or any aspect of CF, please get in touch with our Helpline.

Call 0300 373 1000 or 020 3795 2184, Monday–Friday 10am–4pm
Email [email protected]
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Message us on WhatsApp on 07361 582053