Not Just the Lungs Week
“Is that the condition where you cough a lot?” We’ve all heard it, haven’t we? When in fact, CF is so much more than the lungs.
It’s a life-long, life-limiting condition that affects the whole body and requires multiple daily treatments and therapies to stay well. It’s 24/7. 365 days a year. You never get a day off from CF.
But while 90% of the population have heard of CF, nearly 30% of people think it only affects the lungs.
This week we’re shining a spotlight on some of the additional symptoms and complications of CF outside of the lungs, from gut symptoms and diabetes to fertility and bone health.
If you'd like to get involved and share your experience, join the conversation using #notjustlungs and don't forget to tag us @cftrustuk.
My day-to-day life consists of loads of medication, rest, snack breaks and Creon for digestion. I’ve been really lucky to not have any chest treatments as my lungs are fantastic, but I still have around 30 tablets of Creon and 20 tablets for other treatments every day – this really surprises people. I think people underestimate how complex CF can be, and how difficult it can make day to day life. Growing up I realised that on the outside, I looked healthy, and this made it difficult for others to “see” the CF I was describing.
Margot, 21, who has CF
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