Strong Beginnings

parents and baby

Strong Beginnings

Find out more about our events for parents and carers of babies and young children with CF.

Email [email protected] to sign up today!

We run free online events for parents and carers of babies with CF.  

At these events families with young children with CF can connect with each other, in a supportive and understanding environment. We use the video calling platform Zoom to bring you together safely.  

Please email [email protected] with any questions, suggestions or to find out more and sign up!

Coming up...

Supporting your child through hospital procedures, for parents of children aged 2-4

30 June 7.30–9pm

A gentle, parent-focused session led by a CF psychologist. This will be a safe space to talk about the challenges of hospital procedures. Together, we'll explore simple ways to support your child and care for yourself during the difficult times in hospital. 

Parent Connect, for parents of children aged 0-1

21 July 7.30–9pm

This is a space to meet and chat to other parents of children with CF aged up to 24 months. The conversation will be guided by Jess, who is a parent of a young child with CF.

Spaces are limited!  If you'd like to sign up or find out more, then get in touch with the youth team at [email protected].  You can also keep up to date at @CFtrustyouth on Instagram.

Ask YAG

We have held two very special Strong Beginnings events, where young people from our Youth Advisory Group kindly answered questions sent in by parents of children with CF.

You can watch the January 2025 event here

And the March 2024 event here

Festival fever

Download our festival planning information, which is full of loads of great tips for making sure you have the best time possible.

Pre-school and primary school

Starting pre-school or primary school can be an exciting and daunting time for parents, particularly if your child has cystic fibrosis (CF).

What is CF?

Cystic fibrosis (CF) is a genetic condition affecting around 11,000 people in the UK.