Research award reminders

Commencement notice – Don’t forget to complete and return this once your project starts. This sets the open and close dates of the award and invoices cannot be approved until these are returned. 

Invoices – To prevent payment delays remember to invoice quarterly, in arrears, with a breakdown of expenses attached and stating the grant award reference given in your award letter. 

Progress reports – Please use the templates we provide for reporting and return by the deadlines given. Late reports may delay grant payments.

For any queries about Governance and Finances please contact [email protected]

It is a condition of our award that you acknowledge funding from Cystic Fibrosis Trust in presentations and publications. 

Papers / abstracts: Please use the following format for written acknowledgements

 ‘We received funding from Cystic Fibrosis Trust, UK PI Surname/grant reference to conduct these studies’

Posters and presentations: Please use an up-to-date version of our logo to acknowledge funding on research posters and presentations (see below).

Our logo: For a copy of our logo or enquiries about the use of our logo on resources related to your grant please contact us on [email protected]

For any queries about acknowledgement of funding please contact [email protected] 

Accepted papers Please let us know when you have had a paper accepted for publication to give us the opportunity to share any updates with people with CF and donors to the charity. We will always respect publishers / institution embargos, but advance notice helps us with our planning.

Awards and other news

Please let us know if you’ve been given an award (from a poster prize to a Nobel prize!) so we can celebrate with you. 

If you’re talking to your institute or your departmental communications team or Press Office about a research paper, award, other news story please do let us know too, so we can amplify the news too.

For any queries about Publications and impact please contact [email protected] 

Researchers can apply to access data from UK CF Registry and European CF Society Patient Registry. Find out more information on the data available, the application process and the fees to access the data.

UK CF Registry

The UK Cystic Fibrosis Registry is a secure centralised database, sponsored and managed by Cystic Fibrosis Trust. It records health data on consenting people with cystic fibrosis (CF) in England, Wales, Scotland and Northern Ireland. The UK CF Registry sends annual data to the ECFS Patient Registry.

Researchers from recognised institutions can apply for access to aggregated, anonymised, or pseudonymised data from the UK CF Registry to perform their own analysis for the benefit of people with cystic fibrosis.

Registry fees: While the UK CF Registry does not charge for the use of data, it must recoup costs of data handling (including extract and cleaning), project management, and analysis (where applicable) on behalf of third parties. 

There is an expectation that non-commercial research use of UK CF Registry data will be grant funded, and that such a grant will incorporate the current UK CF Registry costs. For current information on fees, or support with costing your grant application, please contact [email protected]

Apply for data

European CF Society Patient Registry

The European Cystic Fibrosis Society Patient Registry collects demographic and clinical data from consenting people with CF in Europe. The Registry’s database includes data from more than 56,000 people with CF, from 42 participating countries and longitudinal data from 2011 to 2023.

The information is used to measure, survey and compare aspects of CF and its treatment in participating countries, to deepen our understanding of CF, to improve standards of care, to provide data for epidemiological research and to facilitate public health planning.

The Registry encourages the use of these important data for scientific research and welcome applications for data. Data applications will be subject to a fee depending on the nature and source of the request. More information on data requests is available on ECFS Patient Registry website.

Find out more

Early career researchers: European Young Investigators meeting - Feb/March

Cystic Fibrosis Trust conference: check our Conference and meetings page for dates

European conferences from European CF Society (ECFS)

ECFS basic science conference - March

ECFS – June

North American CF Conference (NACFC) - Sept/Oct/Nov

Check our Research noticeboard for other diary dates and funding calls.