CF Accelerate
We can help accelerate your research every step of the way! Our services include engaging with the CF community to influence study design, using one of the most advanced CF registries in the world to identify eligible participants, and offering a dedicated clinical trials network, ensuring robust support throughout your project.
Patient and Public Involvement and Engagement (PPI&E): Shaping better research
Our 300+ member Community Involvement Group brings the lived experience of people with CF and their families into every step of the research process. From identifying research priorities and unmet needs, to designing and creating accessible patient-centered trials.
We can provide:
- insight reports for community perspectives on specific topics
- focus groups
- reviews of funding applications, relevant sections of draft proposals or protocols, lay summaries, and patient materials
- support to ensure MHRA/NIHR PPIE expectations are met for clinical trials.
UK CF Registry: Powering data-driven research
The UK CF Registry is a world-leading, secure centralised database that collects comprehensive health data from over 11,000 people with cystic fibrosis across the UK, with approximately 99% of people across the UK consenting to share their data with the UK CF Registry.
You can see the latest insights from the UK CF Registry in our annual data report.
The UK CF Registry provides:
- feasibility and recruitment centre selection insights
- post-marketing safety and efficacy surveillance
- real-world evidence for HTA and regulatory submissions
- epidemiological analysis and long-term outcomes monitoring.
Clinical Trial Accelerator Platform (CTAP): Supporting fast and efficient CF trial delivery
Cystic Fibrosis Trust set up the Clinical Trials Accelerator Platform (CTAP) to speed up the development of new CF treatments in the UK and make it easier for people with CF to learn about taking part in clinical trials.
Our network of 25 CTAP centres reaches around 90% of the UK CF population and supports delivery of trials across all phases and therapeutic areas. It is part of a highly successful global trials network in partnership with the European Cystic Fibrosis Society’s Clinical Trials network (ECFS-CTN) and Cystic Fibrosis Foundation’s Therapeutic Development Network (CFF-TDN).
CTAP provides:
- dedicated and highly experienced CF trial coordinators
- efficient study set-up and recruitment support at both adult and paediatric centres
- specialist expertise, capabilities and experience to deliver advanced medicinal product trials such as genetic therapies
- proven patient referral system for recruitment beyond CTAP centres
- a platform to give the CF community and their families access to clinical trials.
Get in touch to find out how we can accelerate your clinical research
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CF Lung Health Network
Guided by insights and experiences of people with cystic fibrosis, this programme will address new ways to detect, diagnose, treat and manage lung infections and lung health.
Apply for funding
We're committed to funding and supporting researchers at all stages of their career. Take a look at our current opportunities and find out how to apply.
Our research goals
Through our research goals we will accelerate progress towards a future where everyone with CF can live a life unlimited.