To mark CF Week, Emily reflects on what she wishes more people knew about CF, and how it has both limited and motivated her to live a life that she never dreamed possible.
A recent YouGov poll shows that 86% of people don’t realise that people with cystic fibrosis (CF) can’t meet each other in person due to the risk of passing on dangerous infections. This CF Week, we chat to Phoebe, 24, who has CF, about the isolation it can bring, and how she finds it one of the hardest parts of living with the condition.
New Cystic Fibrosis Trust survey data launching as part of Cystic Fibrosis Week (9-15 June) reveals the isolation of living with the lifelong and life-limiting condition without a cure
David Ramsden, our Chief Executive, introduces CF Week 2025 (9-15 June), and the challenges for people with CF that come from not being able to meet one another in person.
Feeling lonely and experiencing social isolation can be a challenge for people with CF and their families, because of the medical demands of the condition, frequent hospital trips, and the need to avoid contact with other people with CF due to cross-infection risks. Here, Dr Anna Shipton, a clinical psychologist in the adult CF service at Frimley Health NHS Foundation Trust, shares her tips for dealing with these feelings.
With just over a week to go until Wear Yellow Day (13 June), we're sharing the story of Michaela and her son Mason, 3, who has cystic fibrosis. Michaela will be showing her support this Wear Yellow Day by organising fundraisers at Fulham Football Club, where her dad works, as well as at a local school, nursery, and pub. We chatted to Michaela about how fundraising makes a huge difference to families such as theirs.
