We sat down with Amanda, 28, whose seven-year-old son, Oscar, is autistic and has CF. Amanda spoke about the importance of greater awareness and how healthcare teams can best support neurodivergence and cystic fibrosis.
In December 2023 we held a workshop on ‘CF and ageing’. The aim of the workshop was to understand more about some of the topics/challenges raised in the refreshed CF research priority “How do we manage an ageing population with CF?”.
We were proud to represent people with CF, submitting to the inquiry and providing oral evidence for the Health & Social Care Committee’s report 'Digital Transformation in the NHS'
