Today is Rare Disease Day – a day to shine a light on the challenges faced by those living with rare diseases like cystic fibrosis (CF). This year, we’re marking the day by focusing on an often-overlooked subset of the CF community – those with rarer mutations.
Advances in our understanding of cystic fibrosis mean that there are more effective treatments, so people with the condition are living longer than ever. However, the ageing process can bring its own challenges.
We’ll be holding an online awards ceremony on 14 November to shine a light on some of the incredible people who have made a difference to the CF community.
This study will evaluate a new AI feature on the Breathe RM smartphone app called Breathe RM Signal. The feature aims to predict flare-ups of lung symptoms (known as exacerbations) and reduce unnecessary routine hospital visits for people with CF. Breathe RM smartphone app has been co-designed with people with CF. Breathe RM is currently being used in Project Breathe, a study which empowers people with CF to take control of their own health. The app allows participants to monitor themselves at home with Bluetooth connected devices including a spirometer, activity monitor, and weighing scales. This data can then be...
Simran is a final-year Biological Sciences undergraduate at Imperial College London. Last summer, she spent eight weeks working in Imperial’s Centre for Bacterial Resistance Biology, funded by a Cystic Fibrosis Trust Summer Studentship. Here, she tells us about her summer.
