In 2025, Kieran, 27, was put on the transplant list, with his lung function dropping to just 20%. With the support of his family, CF team and Cystic Fibrosis Trust, he’s now feeling stronger than ever and determined to “live life to the full”. We spoke to him about his hopes for the future, what he wishes more people knew about CF, and why he fundraises for the Trust.
After a temporary pause to recruitment Cystic Fibrosis Trust has been working closely with the NIHR to support the re-opening of the CF BioResource study in May 2026 as part of both the rare disease and D-CYPHR (DNA, Children + Young People Health Resource) project. This project will collect samples from participants, including those with cystic fibrosis (CF), so that genetic data from these samples can be joined up with clinical data from registries such as the UK CF Registry. With the goal of enabling researchers to investigate the causes of rare diseases, which can then help improve rate and...
