Earlier this year, many of you shared your experiences of Kaftrio, Orkambi and Symkevi to inform our evidence submission to NICE for their appraisal of these modulator therapies.
Thanks to over 1,100 of you, we were able to submit evidence to NICE, making sure the voices of the CF community were heard.
Today Cystic Fibrosis Trust and LifeArc announced a £15m research programme. The aim is to create a new Translational Innovation Hub Network that will fast track new research and treatments to improve the quality of life for people with CF.
With your support this Wear Yellow Day (16 June), we can continue to fund research into life-changing treatments that work for everyone with cystic fibrosis (CF). Together, we can ensure people with CF like Cheryl can look forward to a brighter future. This is Cheryl and Simon's story.
The identification of a refreshed top 10 of CF research priorities at the end of last year was a defining moment for CF research – a moment that so many of you contributed to. The priorities will help us continue to champion research that will make a difference to the lives of people with CF in the future. Here we explain what’s happened so far.
Celebrating everything from our amazing London Marathon runners, to funding grants for medical research charities, Interior Design contestants, and licensing of medication.
As part of our new programme of employment support for people with CF, Work Forwards, 24-year-old actor Jack Norris shares his journey into acting and talks about how he manages his hectic schedule alongside his CF.
Being more physically active has important health benefits for everyone. As a result, achieving recommended weekly physical activity levels is encouraged within the UK. People with cystic fibrosis (CF) can obtain extra benefits, including improved lung function, as well as many psychological and social benefits. This study will help establish whether digitally delivering (e.g., online) physical activity promotion material is accessible, usable, and engaging in supporting young people with CF to be more physically active. The total time commitment for participation is 6-months. Access to the digitally delivered physical activity promotion material will be provided throughout this period. The trial...
Find out more about ex-vivo lung perfusion, an experimental technique that rejuvenates poor-quality donor lungs in order to make them fit for transplantation.
