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Ben Kind, Head of Policy & Public Affairs
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Published Date:
We are dedicated to making sure that people with cystic fibrosis can live a life unlimited, free of the challenges of CF. We want to ensure that the CF community receives the best care, the right treatments, and the right support – so we have written to the Chancellor as he makes big decisions on funding public services ahead of the Autumn Budget and Spending Review 2021.
The new medicine Kaftrio is now becoming available from the NHS to people living with cystic fibrosis (CF) with suitable genes. In clinical trials, Kaftrio has been shown to make breathing tests better, helping those who take Kaftrio breathe more easily. This improves their overall quality of life. Repeated lung infections cause the main problems in CF. We don’t yet know how Kaftrio might change these lung infections, and how this might change the relationship between ‘good’ and ‘bad’ germs in the lungs. The main idea of this study is to understand how Kaftrio might change lung infections, and how...
The development of gene therapy treatment for cystic fibrosis will be taking a step forward it has been announced today. Find out more about what it means and how the Cystic Fibrosis Trust was involved.
