A new treatment combining ivacaftor and tezacaftor could improve lung function and cut outbreaks of infection according to two Phase 3 studies published by Vertex Pharmaceuticals.
Emma Lake, Community Manager at the Trust, tells us how she's getting on top of her health and taking up a long-lost hobby by joining 24 Hours for CF this summer.
In our second blog about how the coronavirus (COVID-19) outbreak is affecting the cystic fibrosis (CF) community, Poppy shares how she is using this time to keep busy, stay fit and look after her mental health.
Today we launch a brand new Clinical Fellowship to support a physiotherapist as they specialise in cystic fibrosis (CF) care, helping to attract the brightest and best clinicians into this area of work.
The overall aim of our Physical Activity Strategic Research Centre (SRC) is to prescribe physical activity more effectively. The researchers involved are currently seeking your views on your attitudes to physical activity to learn how best to promote it, using a short survey. We’re taking the opportunity to give you a more in depth look at some of the research underway in this SRC, and to tell you how this research could help people with CF in years to come.
In 2013, Philip Grosset was facing an unfair dismissal from his job as the Head of English at a school in York. Since then, he has taken the issue to court, won substantial compensation, and ensured staff at the school undergo further training. We asked Philip for a few tips for employers and employees on handling cystic fibrosis in the workplace.
Lynsey Beswick, Public Affairs Officer at the Cystic Fibrosis Trust, will share her views on Orkambi® from a patient perspective with the Scottish Medicines Consortium (SMC) today.
Find out how you can take part in the Health and Social Care Committee’s inquiry into the availability of Orkambi and other precision medicines on the NHS, and how your words could make a difference. *Submissions are now closed - this story was updated on 01/03/19*
