To mark Valentine’s Day, we chatted to Amelia and her partner David, who has cystic fibrosis (CF), about their love story and why Amelia was inspired to run this year’s London Marathon for the Trust.
Saturday (11 February) is International Day of Women and Girls in Science. It’s an opportunity to celebrate incredible achievements and promote science as a career for women and girls around the world. We talked to five women to find out about their roles in CF research and their advice to other women and girls considering a career in science.
The Trust is keen to encourage healthcare professionals to consider a career in cystic fibrosis research. As one way to do this, we’re a funding partner with National Institute of Health and Care Research (NIHR) in their Pre-doctoral Clinical and Academic Fellowship (PCAF) scheme. The scheme offers applicants time out of their busy work roles to prepare and apply for doing a PhD research degree. Gemma Stanford is a physiotherapist at the Royal Brompton Hospital in London and in the final stages of her PhD. We spoke to her to get the lowdown on life as a researcher.
Ben Kind, Head of Policy and Public Affairs at the Trust, explains how the CF community can join us in calling on governments to provide more and better support to people with CF.
Developing CF diabetes (CFD) is one of the most common complications of cystic fibrosis. In fact, one in three adults with CF in the UK is currently living with the condition. As we publish updated clinical guidelines on the management of CFD, we hear from Sally all about her experience of CFD and her top tips for managing it.
As we work towards making our information resources as useful and relevant as possible for everyone with cystic fibrosis today, we’ve updated our consensus document on The Management of Cystic Fibrosis Diabetes. We published the new guidance at the end of 2022. We’re really grateful for all the help we’ve had from people in the CF community and healthcare professionals that look after people with CF. We hear from Paula Dyce, the Chair of the Working Group for the Diabetes consensus document, to find out more about some of the important changes to the document.
Our Chief Executive David Ramsden writes about our latest research on the cost of living with cystic fibrosis, and how we are providing vital support to those who need it most in these challenging times.
