With your support this Wear Yellow Day (16 June), we can continue to fund research into life-changing treatments that work for everyone with cystic fibrosis (CF). Together, we can ensure children with CF like 18-month-old Luca can look forward to a brighter future. Luca’s dad Jason shares their story.
19-year-old Lily Goddard has cystic fibrosis (CF) and will be running her first marathon at this year’s TCS London Marathon in aid of Cystic Fibrosis Trust.
Here, she tells us how Kaftrio is helping her reach the finish line, what it’s like managing CF alongside training and what keeps her motivated to run.
We recently launched our first ever Cystic Fibrosis Exercise Practitioner Fellowship. The 12-month fellowship has been awarded to Lucia Diego-Vicente, who is based in the CF team at the Royal Victoria Infirmary in Newcastle-upon-Tyne. Here, Lucia shares some simple exercises for the CF community to try at home.
Do you love playing video games with your friends? Reckon you could give Ed Sheeran a run for his money in the singing stakes? Maybe you’re passionate about speaking up on important issues relating to your CF? Our CF Youth Programme is for you! We have loads of social events, workshops and opportunities for young people affected by CF to get involved with. Here’s Jakub and Tilly to tell you more!
We have been working with CF teams across the UK to explore staffing levels in CF multidisciplinary teams. Our Clinical Quality Improvement Manager, Dr Jana Witt, explains why this is important and what we’ve found so far.
James Dunmore, former star of Made in Chelsea, sadly lost his two sisters, Lucinda and Jodi, to cystic fibrosis when he was a young boy. Since then, James has raised thousands of pounds for Cystic Fibrosis Trust by climbing Mount Kilimanjaro, and has supported our campaigns for access to life-changing CF drugs on the NHS. We caught up with James to hear more about his memories of his sisters, coping with the grief, and his determination to raise vital awareness and funds in their memory.
On Thursday 9 March, members of the Sixty Five Roses Club met online to hear from key scientific voices on current research in the CF landscape, and a London Marathon runner about his experience running the marathon with CF.
