Keeping fit with cystic fibrosis (CF) can be tricky, especially when you’re juggling treatments, physiotherapy, and the many other daily tasks required to stay well. But staying active can help you take care of your physical health and your mental health - and can be a lot of fun too! This National Fitness Day (21 September), we asked the CF community how they stay active and how it helps with their cystic fibrosis. From trampolining to Tai Chi, we hope it gives you some inspiration for your own fitness routine.
Mum to 12-year-old twins with CF, Zoë Elliott is passionate about involving the cystic fibrosis community in CF research. She is a member of the Management Committee of the James Lind Alliance CF Research priority refresh project, known as QuestionCF. On the launch of the second QuestionCF survey, we spoke to Zoë about her family, CF research and why QuestionCF matters.
On Sunday 2 October, tens of thousands of people will be limbering up for the TCS London Marathon! Among those taking part will be Mayara, Robyn, and Jennifer, three amazing runners from Team CF. With the countdown well and truly on, we caught up with the trio to find out how their training is going and their motivations for taking part.
A small gift goes a long way. Leaving a gift in your Will to our charity can help change what it means to live with CF in the future. Here’s how you can support a cause close to your heart -and make sure that everyone with CF can live a life unlimited.
As we approach the mid-way point of the QuestionCF project, it’s time for the halftime analysis! Here we share what’s happened in the project so far, what’s to come, and how you can get involved and play a crucial role in shaping future CF research.
Our amazing supporter Duane McCreadie from Northern Ireland cycled 200 miles from Wicklow to Donaghadee in July this year, raising over £10,000 for the Trust. Here he chats about his fundraising, his 2-year-old son Xander, who has a rare cystic fibrosis (CF) mutation, and his hopes for a future without limits for his little boy.
From developing CFTR modulators and antibiotics to new physio techniques, clinical trials play a vital role in helping ensure people with cystic fibrosis can access the newest treatments being developed. In 2017, we launched the Clinical Trials Accelerator Platform (CTAP) and the CF Trials Tracker database with the aim to create more opportunities for the CF community to take part in clinical trials. Five years (and over 1,000 trial recruits) later, we look at how these platforms have changed the CF research landscape, and speak to people from the CF community about their experience and motivations for taking part in CF research.
