Parent and grandparents of people with cystic fibrosis and supporters of the Trust gathered in London on Tuesday for an update on the Trust’s vision for a life unlimited by cystic fibrosis for everyone born with the condition.
NHS proposals to dismantle the body that represents cystic fibrosis (CF) clinicians and those directly affected by the condition meets strong opposition.
The Cystic Fibrosis Trust and Cystic Fibrosis Canada have announced an international collaboration on the Trust’s CLIMB-CF study into home monitoring in children.
With just one day to go until CF’s Got Talent! takes centre stage at the UK Cystic Fibrosis Conference, we caught up with the five individuals who will be presenting their research in a non-scientific way to our online audience at 5pm on Wednesday 6 September.
NICE announce planned timeline for assessing Vertex’s triple combination therapy (known as Trikafta in the US) and the EMA allow more time in their process to assess who the license would cover.
This morning the drug manufacturer Vertex announced some encouraging preliminary results for their next generation of precision medicine. But what does it all mean? We asked Dr Janet Allen, Director of Strategic Innovation at the Trust, to pull out the key findings from the press release.
The Trust’s Clinical Trials Accelerator Platform is growing its network of UK cystic fibrosis (CF) centres through a collaborative new scheme, expanding clinical trial accessibility for the CF community.