We have been working with CF teams across the UK to explore staffing levels in CF multidisciplinary teams. Our Clinical Quality Improvement Manager, Dr Jana Witt, explains why this is important and what we’ve found so far.
As university terms start around the UK, former students Cicely and Nicola, who both have cystic fibrosis (CF), answer questions on their experiences of money, budgeting and getting support from their universities.
Poppy, 31, from Wales, was the winner of our Helen Barrett Bright Idea Award back in 2015. Following her first solo art exhibition, Poppy tells her story of living with CF and receiving a double lung transplant, the impact of CF on her mental health, and why budding artists should ‘stop scrolling and start experimenting’.
Frimley Park cystic fibrosis (CF) centre has announced the addition of Dr Alexandra Ewence, who was part of our Clinical Training Fellowship programme in 2017, as its new CF consultant. We spoke to Alexandra about her journey into CF medicine, her experiences as a Fellow, and her thoughts on what makes CF care unique.
New research using the UK Cystic Fibrosis Registry has revealed for the first time a clearer picture of predicted survival both for those born with cystic fibrosis (CF) and for those already living with the condition.
We are excited to announce that our new resource for children, Cracking the CF Code, is out now! This resource was completely written by young people in our Youth Advisory Group (YAG), and they use their knowledge and experiences to explain tricky medical words and concepts to 6–9-year olds. Tilly, who is a member of YAG, explains more about the inspiration behind it.
More than four in 10 people with CF will develop CF diabetes. CF diabetes is a distinct form of diabetes unique to people with cystic fibrosis. The signs and symptoms of CF diabetes share similarities to both Type 1 and Type 2 diabetes, but the underlying cause is different. For #notjustlungs week, we’re sharing some of your experiences of receiving a diagnosis of CF diabetes, how it impacts your day to day lives, and your wishes for research into the condition.
