In the last couple of weeks we’ve been busy reflecting on some of the ground-breaking work that took place under the last research strategy, made possible by our incredible supporters, and looking ahead to where we’re heading with the new one. To whet your appetite for the UK CF Conference from 9-10 September in Birmingham, here’s a closer look at some of the research taking place right now.
James, 35, is an actor and performer living with CF. We chatted to him about setting up an online group for others with CF, dealing with ‘survivor’s guilt’, and celebrating the wins in life.
Since his daughter was diagnosed with cystic fibrosis (CF) in 1992, Liam McHugh has raised over £270,000 and covered around 180,000 miles in support of the Cystic Fibrosis Trust. On 2 October, Liam was deservedly named Northern Ireland’s Pride of Britain. In this feature, Liam shares the moments in his life that led to this moment, and how his tireless campaigning and fundraising efforts have brought life-changing breakthroughs to the CF community.
We interviewed Diane Shader Smith, mum to writer Mallory Smith, about her daughter’s legacy – and why she’s calling for better treatments in the fight against superbugs
