The Trust has funded and supported a wide range of research studies that have contributed to improvements in quality of life and survival for people with cystic fibrosis (CF) over the last 50 years
On Sunday 2 October, tens of thousands of people will be limbering up for the TCS London Marathon! Among those taking part will be Mayara, Robyn, and Jennifer, three amazing runners from Team CF. With the countdown well and truly on, we caught up with the trio to find out how their training is going and their motivations for taking part.
A small gift goes a long way. Leaving a gift in your Will to our charity can help change what it means to live with CF in the future. Here’s how you can support a cause close to your heart -and make sure that everyone with CF can live a life unlimited.
As we approach the mid-way point of the QuestionCF project, it’s time for the halftime analysis! Here we share what’s happened in the project so far, what’s to come, and how you can get involved and play a crucial role in shaping future CF research.
Our amazing supporter Duane McCreadie from Northern Ireland cycled 200 miles from Wicklow to Donaghadee in July this year, raising over £10,000 for the Trust. Here he chats about his fundraising, his 2-year-old son Xander, who has a rare cystic fibrosis (CF) mutation, and his hopes for a future without limits for his little boy.
From developing CFTR modulators and antibiotics to new physio techniques, clinical trials play a vital role in helping ensure people with cystic fibrosis can access the newest treatments being developed. In 2017, we launched the Clinical Trials Accelerator Platform (CTAP) and the CF Trials Tracker database with the aim to create more opportunities for the CF community to take part in clinical trials. Five years (and over 1,000 trial recruits) later, we look at how these platforms have changed the CF research landscape, and speak to people from the CF community about their experience and motivations for taking part in CF research.