Rosie and Seb

We know from speaking to parents who have cystic fibrosis (CF) that explaining the condition to their children can be tricky. We’ve worked with families affected by CF, and CF clinicians, to publish these two stories about Seb and Rosie, who both have a parent with cystic fibrosis. Both stories are roughly aimed at children aged 5–9 years old – but that’s not to say that children of all ages can’t enjoy them!

Seb’s and Rosie’s stories aim to encourage conversations about cystic fibrosis and how it can affect the lives of people with the condition and their families. Both books include things to chat about with your child after you have read the story. They were funded by Jeans for Genes, a charity that raises money for the care of children and families who are affected by genetic disorders.

These books are regularly reviewed to check that they are still relevant, up to date and accurate, but due to the format minor changes are not always possible. Please be assured that should the content no longer meet our high standards, it will be removed from circulation.

Seb family

Seb’s Best Game

Meet Seb! He lives with his mum, dad, big (sometimes annoying) sister, Ella and their dog Puss. Seb is football mad (he even plays in his dreams!) and super excited when he finds out that he's been chosen to play in a big tournament. But will his dad be able to cheer him on, or will his cystic fibrosis get in the way?

  • Download

    You can download Seb's Best Game as a PDF to read on your laptop, tablet or mobile.

    Download Seb's story

  • Order

    You can order Seb's Best Game as a hardback copy to be sent straight to your door by filling in our order form. Alternatively, you can contact our helpline by emailing [email protected] or calling 0300 373 1000.

    Order Seb's story

  • Watch

    We've turned Seb's story into a motion storybook that you can watch on your phone, tablet or laptop! These motion books were narrated by Laurence Rickard of Horrible Histories.

    Watch on YouTube

    This video is regularly reviewed to check that it is still relevant, up to date and accurate, but due to the format minor changes are not always possible. Please be assured that should the content no longer meet our high standards, it will be removed from circulation.

Rosie family

The Lost Collar Investigation

Meet Rosie! She lives with her mummy, daddy, big brother Bobby and their dog Milo. One day Rosie wants to take Milo to the park, but his collar is missing! Rosie and Mummy start their collar investigation – will they find it at mummy's CF check-up at the hospital, in the garden or at the park?

  • Download

    You can download The Lost Collar Investigation as a PDF to read on your laptop, tablet or mobile.

    Download Rosie's story

  • Order

    You can order The Lost Collar Investigation as a hardback copy to be sent straight to your door by filling in our order form. Alternatively, you can contact our helpline by emailing [email protected] or calling 0300 373 1000.

    Order Rosie's story

  • Watch

    We've turned Rosie's story into a motion storybook that you can watch on your phone, tablet or laptop! These motion books were narrated by Laurence Rickard of Horrible Histories.

    Watch on YouTube

    This video is regularly reviewed to check that it is still relevant, up to date and accurate, but due to the format minor changes are not always possible. Please be assured that should the content no longer meet our high standards, it will be removed from circulation.

What are your CF stories?

Does your child have a favourite book about cystic fibrosis? Is there a book you’ve used to teach your child about the condition and what it means? If so, we’d love to hear from you! Tweet us @cftrust or tag us on Instagram @cftrustuk to share your favourite CF stories.

Find support

There's loads of support available for people with cystic fibrosis and their families, from grants to help with benefits.

Helpline

Contact our wonderful helpline team by telephone or email, Monday to Friday, for answers to your questions.

Apply for our grants

Find out more about the grants we offer, from emergency grants for transplant assessments or funerals to health and wellbeing grants to help fund exercise equipment or household goods.

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