Resources for children and young people

This film aims to help children understand a bit more about CF, a condition that affects over 4,000 children in the UK. We've also put together some fun activities 

Check out CF: What's it all about?

We know from speaking to parents who have cystic fibrosis (CF) that explaining the condition to their children can be tricky. We’ve worked with families affected by CF, and CF clinicians, to publish these two stories about Seb and Rosie, who both have a parent with cystic fibrosis. Both stories are roughly aimed at children aged 5–9 years old – but that’s not to say that children of all ages can’t enjoy them!

Take a look at the books

Cracking the CF Code is a resource for children aged 6–9 with CF, and was written and created by young people aged between 14 and 25 in our Youth Advisory Group. The resource provides child-friendly definitions for over 80 medical words that children with CF may hear their parents and CF team use.

Download Cracking the CF Code

The group used their own experiences to write the definitions – mixing science and fact with personal feelings and experiences.  The group created this resource in the hope that children with CF would no longer feel anxious and confused about their medical care, and would be empowered to understand what is happening to their bodies.

The young people wrote the resource over two and a half years – working together at meetings held twice a month on Zoom.  The end result is an exciting and engaging journey through CF care, which uses illustrations and a code-breaking spy theme to bring five YAG members to life on the page.