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Cystic Fibrosis Trust
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Focus Group - Registration

The Cystic Fibrosis Trust’s Clinical Trials Accelerator Platform  aims to increase the availability and accessibility to clinical trials for people with cystic fibrosis, and to ensure Patient and Public Involvement (PPI)  is present at each stage.  PPI has been shown to greatly enhance the success of clinical trials and increase participation and retention through increased understanding and confidence. 

We are building a Focus Group comprising of people with cystic fibrosis and family members from across the UK, who have a keen interest in the clinical trials landscape.

Focus Group Members will be able to;-

  • Provide a wide and diverse representation of our CF Community
  • Provide their views, opinions and feedback on tools and resources of the Cystic Fibrosis Trust, including literature, webpages and the Cystic Fibrosis Trials Tracker
  • Complete surveys, questionnaires and comment forms from the Trust, clinical teams or researchers/industry helping to ensure a high response rate and robust results
  • Join webinars, digital forums and social media feeds to comment on proposed new CF treatments or procedures
  • Provide feedback to pharma/industry or academics on clinical trial design in the conceptual stage, ensuring that the needs and requirements of the CF Community are being taken into consideration
  • Join Question & Answer sessions
  • Form part of our overall PPI Group along with the Peer Advocates and Lay Reviewers
  • Join extended PPI Group meetings via Skype
  • Have use of a computer

This is without obligation.  There is no need to commit to a standard number of hours for this role as opportunities will arise on an ad-hoc basis.

Register below

Title
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Name
Forenames
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Surname
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Address
Postcode
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Address line 1
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Address line 2
Address line 3
Address line 4
Town
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Telephone
Mobile phone
Landline (incl. area code)
Email
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We encourage Involvement from all sectors of our CF Community – which best describes your connection?
Chose one of the below options:







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Other (Please Specify)
Please confirm age range you represent of a person with CF (some questionnaires or surveys may only be relevant to paediatrics or adults)
Chose one of the below options:


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This is not a requirement, but if you have any past experience of trial participation, can you give brief details
(What was the trial for, what did you do, how long did it last, do you know the outcome?)
Clinical Trials Newsletter

Research we're funding

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.