CF7: Activities for young people, CF-related diabetes research, and more

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Welcome to CF7. Each Friday we share seven pieces of cystic fibrosis (CF) news, resources and community stories from the week.

Call for clarity on shielding

The Cystic Fibrosis Trust has called for clarity on shielding in England, after unofficial reports this week on the future of the shielding programme. We're expecting an official announcement from the Government shortly, and they have pledged to write to everyone impacted by shielding changes following the announcement. Our coronavirus help and advice will be updated as soon as we have further news.

What we’ve learnt about CF-related diabetes

This week we published our Research in focus report on CF-related diabetes (CFRD). It explains the impact CFRD has on the lives of people with CF, what we’ve learnt about why insulin production stops and what we hope to find out next in a new CFRD Strategic Research Centre grant.

Uphill struggle for awareness of the impact of CF

A YouGov poll commissioned for CF Week reveals four in five of the general public are unaware that people with CF cannot meet one another due to the risk of passing on potentially deadly bugs, while the prevalence of the CF gene and issues such as the burden of care are also little understood. Find out more.

Rob Law: 65 Roses and a Trunki

He’s defied Dragons and all the odds to launch a world-famous luggage brand, and now as Rob Law MBE unveils his new autobiography, the entrepreneur talks to us about some of the lessons he has learned from a life balancing CF, the ever-changing business world and raising a family. Read the interview.

Win big and support people with CF

Help support people with CF by playing our Summer Raffle and be in with a chance of winning £2,000! Tickets cost only £1 each: you can purchase them online and every ticket you buy will help us fight for a life unlimited for everyone affected by the cystic fibrosis Other prizes include £200, £500, a Super Buyer prize of £250 and 10 x £25 Marks & Spencer vouchers. Thank you, and good luck!

More activities for young people, from juggling to gaming

We’ve added even more events to our online programme for young people with cystic fibrosis. From juggling to dance to games nights, we’ve got loads of fun activities planned over the next few weeks that young people with CF can take part in.

Panel discussion: What does balancing CF mean to you?

One of the live events we held this week as part of CF Week was a Zoom panel discussion with an adult with CF, two CF parents and a CF psychologist. Catch up with the discussion, which explored the CF Week theme of balance, and let us know if you’d like to see more of these kinds of events.

Donate now to support the Trust’s fight for a life unlimited by cystic fibrosis through ground-breaking research and the highest standards of clinical care. 

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