We interviewed Diane Shader Smith, mum to writer Mallory Smith, about her daughter’s legacy – and why she’s calling for better treatments in the fight against superbugs
Today the new energy price cap comes into force, which will see energy costs rise across the UK. For many within the CF community, this will add to the financial burden and exacerbate the cost-of-living pressures they are already experiencing.
As part of our #CFTruths campaign, we caught up with Matilda, 23, who shared her experience of the COVID-19 pandemic, the importance of raising awareness of cystic fibrosis, and her advice for other young people with CF.
As we mark two years since the start of the pandemic, Dr Rachel Massey-Chase, co-chair of the UK Pyschosocial Professionals in CF group, has written another open letter to the CF community. The letter acknowledges the changes the past two years have brought and the mixed feelings you may have as restrictions have eased across the UK. It also provides tips on managing uncertainty and anxiety.
The cost of living with cystic fibrosis (CF) can often feel overwhelming, with the COVID-19 pandemic only adding to the financial uncertainty and hardship many in the community are facing. Research shows that poverty and social deprivation can significantly impact the physical and mental health of people with long-term health conditions like CF. Here, we delve into the data to explore this in more detail and discuss what the Trust is doing to tackle health inequality.
On Tuesday 29 March 2022, our Patron, His Royal Highness The Prince of Wales met with people affected by cystic fibrosis (CF), in a celebration of the strength of the CF community.
